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What are the best treatments for Castleman disease?

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Castleman disease treatments
3 answers
They say that for UCD removal of nodes Is best, but from my experience and meeting others, I believe treatment like I had for MCD is best.
I've had 3 lots and only suffer from sweats. I think rituximab or equivalent should be administered for all castlemans disease patients

Posted May 20, 2017 by Dave 860
There are so many, What works for one person may not work for the next. In the US as of right now Siltuximamb is the only USDA approved medication for Castleman Disease.

Posted Oct 7, 2017 by Victoria 840
Inhibitions of IL-6 so far seems to be the best approach, which is what the drug Siltuximamb does.

And there are other ways to inhibit IL-6 besides drugs: https://www.selfhacked.com/blog/interleukin-6/

Posted Feb 26, 2018 by dandsp2 300

Castleman disease treatments

Castleman disease life expectancy

What is the life expectancy of someone with Castleman disease?

3 answers
Celebrities with Castleman disease

Celebrities with Castleman disease

1 answer
Is Castleman disease hereditary?

Is Castleman disease hereditary?

2 answers
Is Castleman disease contagious?

Is Castleman disease contagious?

3 answers
ICD9 and ICD10 codes of Castleman disease

ICD10 code of Castleman disease and ICD9 code

2 answers
Natural treatment of Castleman disease

Is there any natural treatment for Castleman disease?

2 answers
Living with Castleman disease

Living with Castleman disease. How to live with Castleman disease?

3 answers
Castleman disease diet

Castleman disease diet. Is there a diet which improves the quality of life ...

4 answers

World map of Castleman disease

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Stories of Castleman disease

CASTLEMAN DISEASE STORIES
Castleman disease stories
Desde 2012, aparece bolita en el cuello, se hace biopsia PAFF da Sindrome Linfoproliferativo, se pide operar para biopsiar mejor, ahi el 31/10/12 se hace, el resultao Enfermedad de Castleman, y comienza el peregrinar, mas de 10 sesiones de Quimiotera...
Castleman disease stories
I was diagnosed with UCD in 2009 and had a large mesenteric mass removed along with a right hemi colectomy. I have had quite a few complications following, ie incisional hernias, bowel adhesions and bile acid malabsorption . Even though I am told tha...

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Castleman disease forum

CASTLEMAN DISEASE FORUM

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