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Cholesteatoma
Advice
Advice of Cholesteatoma
I found a group on Facebook comprised of others who are affected.
by Michael
Advocate for your child.
by A Lennon
Netti pot with saline solution
by Pattie
Having my first surgery to remove the disease
by Kaleb031209
TMJ mouthguard. I developed TMJ from tube down throat after 1st 5 hr.surgery. The guard stops muscle tightening over ear/eases head pain, esp. when stressed!
by CTomaDue2MisDXBADdoc
Joining Facebook groups helped me to cope
by Steph
After going through something as painful as a cholesteatoma, you can get through any pain
by hannahkollerbottone
I am loved and the people in my life will be there for me
by Sandra
Waiting on 1 more operation to completely remove disease
by Katie
being able to relax after surgery
by Shiv
My friends who help me laugh every day- help to distract from surgeries!
by Margotminnows
I developed a relationship with somebody that actually wants to learn what I'm experiencing and how to help
by Malt2055
Work. Keeping my mind busy
by Jimmy L
Learning more about the condition
by Elizabeth
I have facial neuropathy following the operations and so I use a bone conducting hearing aid (its like a tiny ipod)
by Nessie
My mom who takes me to every appointment and surgery!
by ML1015
I'm still able to do what I want to do in life
by Tammy
Motrin for pain and swelling
by Angiekean
Met Mijn nieuw dieet heeft mijn veranderd sinds de cholesteatoom operatie
by Nathalie
Support from facebook pages of people with the same disease I have meant I could get information, support and advice from people who understand
by emstofogus
Listening to music helps me
by Susan
Function as normal as possible
by Samuitje
Hearing aids seem to help some but still concerned that I waited too long not getting the help I needed.
by DDM
Faith or religion
by Joseph
Faith or religion
by Joseph
I keep up to date and read about the disease
by Alice
Belonging to a WhatsApp group to share experiences
by Annie
Music and books always makes things better.
by JWilcox
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