Is it easy to find a partner and/or maintain relationship when you have Congenital Sucrase Isomaltase Deficiency?
People with experience in Congenital Sucrase Isomaltase Deficiency give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Congenital Sucrase Isomaltase Deficiency. What are the possible difficulties in having a relationship?
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Diagnosed at age 6 in Melbourne.
No known family history of disease.
No sucraid available in Australia so diet only to treat condition. Normal lactase enzyme but sucrase and maltase levels extremely low or non existent.
My son has CSID. Diagnosed at 5 years of age. It's been a long journey to get to this point.
As there is no access to sucraid in Australia, we are purely trying to manage by diet alone.
As a mother, I will always be a voice for my young son and...
my name is Millie and I was diagnosed with SI at age 18 months as I didn't fall under the top four genetic mutations of CSID and it was too expensive to continue testing, but I follow the exact same diet and can't have sucrose or much starch. I have ...
Hello,
Just curious, do any of you struggle with UHT milk? I am fine with all other dairy but for some reason UHT is a no go for me.
For the life of me I can't figure out why, there are no added sugars. I'm wondering if this is a 'CSID thin...