At age 17ish, I sustained a head injury. My symptoms started just after that time. I went through 20+ PCPs over the years...countless specialists...but was considered a Medical Mystery.
At age 43, I had enough of suffering. I found a doc at Presbyterian Hospital in Pittsburgh, PA. He is through the Digestive Disorder Center there. Believe it or not, my symptoms were reduced about 2 days after my first visit with him. About a year later, my syptoms started 'breaking through' the meds. He added an anti-convulsant to my med routine and BAM! no more episodes. I have been episode free for almost 7 months now.