Story about Dandy-Walker Syndrome , Hydrocephalus.

Morgan

Dec 29, 2015

By: Alex


I joined this group in the hope to raise awareness. My son was born with Oesophageal atresia ( now repaired ). A week later we found out he also had dandy walker variant, lissencephaly and spina bifida occulta. Doctors couldn't give us much information but told us as much as they could. We learned to cope. Two years on and we found the dandy walker pages on facebook, which felt like a huge weight had been lifted. We learned so much from others and we're reassured. We are still learning about dandy walker but would like to help others as best we can

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Dandy-Walker Syndrome cure

Does Dandy-Walker Syndrome have a cure?

Dandy-Walker Syndrome is also known as...

Dandy-Walker Syndrome synonyms

Do I have Dandy-Walker Syndrome?

How do I know if I have Dandy-Walker Syndrome?

Dandy-Walker Syndrome diagnosis

How is Dandy-Walker Syndrome diagnosed?

Celebrities with Dandy-Walker Syndrome

Celebrities with Dandy-Walker Syndrome

Living with Dandy-Walker Syndrome

Living with Dandy-Walker Syndrome. How to live with Dandy-Walker Syndr...

Dandy-Walker Syndrome jobs

Can people with Dandy-Walker Syndrome work? What kind of work can they...

Dandy-Walker Syndrome symptoms

Which are the symptoms of Dandy-Walker Syndrome?