A physical therapist who understood connective tissue diseases.
Joining support groups and knowing your not alone
Baths are and always have been #1 for increasing my mood.
Meds
Keep a positive attitude
Staying hydrated
Exercise in baby steps from wheelchair to hill climbing
Postitive mindset
Dexamphetamine tablets have helped with brain fog and hypersomnia
None
Faith
Ehlers danlos and PoTS fighter
Increased water intake
Volver con mi pareja
My awesome Docs
Always staying hydrated.
Savella
Thinking positive
Permanent Disabled due to Arnold Chiari Malformatioin
Metoprolol
Taking 50 mg of Metoprolol twice a day
Always keep moving
Lower extremity strength training
Dieta alta en proteinas
Love from family and friends
I take salt and lots of water every day. Currently taking salt pills with sodium chloride and potassium citrate.
We have a great pediatricain. She is the one who thought that POTS might be the culprit.
Tomar mucha agua
TENS unit
Low dose naltrexone, temazepam, tizanidin, bisoprolol, acetylsalicylic acid, DHEA, 7-keto-DHEA, progesterone cream, B12 supplements, iron + megadosing vitamin C, magnesium citrate, MCT oil, Cod liver oil, zinc picolinate, trace minerals
Having someone with me at all times.
Finding a Complex Diseases Management Specialist
Sodium cromoglycate
gua sha
Intrathecal pump with Prialt
Having a GP that believes me, and believes in me has made the biggest difference.
Knowing my limits!
Splints, braces and compression clothing
Physical therapy
Zoloft has really helped with my depression
My always caring and supportive partner
Compression stockings
my mom who is very supportive and looks for long term solutions to issues
Concor - betabloqueadores
No hacer esfuerzos y no agacharme
Diagnosticado 2020
Going to Cincinnati Children's hospital