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How do I know if I have Ebsteins Anomaly?

What signs or symptoms may make you suspect you may have Ebsteins Anomaly. People who have experience in Ebsteins Anomaly offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Ebsteins Anomaly?
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Do I have Ebsteins Anomaly?

Ebsteins Anomaly symptoms

Which are the worst symptoms of Ebsteins Anomaly?

Ebsteins Anomaly diet

Is there a diet which improves the quality of life of people with Ebsteins...

Ebsteins Anomaly cure

Does Ebsteins Anomaly have a cure?

Do I have Ebsteins Anomaly?

How do I know if I have Ebsteins Anomaly?

Prevalence of Ebsteins Anomaly

What is the prevalence of Ebsteins Anomaly?

Ebsteins Anomaly life expectancy

What is the life expectancy of someone with Ebsteins Anomaly?

Living with Ebsteins Anomaly

How to live with Ebsteins Anomaly? Can you be happy living with Ebsteins An...

Ebsteins Anomaly jobs

Can people with Ebsteins Anomaly work? What kind of work can they perform?

World map of Ebsteins Anomaly

Find people with Ebsteins Anomaly through the map. Connect with them and share experiences. Join the Ebsteins Anomaly community.

Stories of Ebsteins Anomaly

EBSTEINS ANOMALY STORIES
Ebsteins Anomaly stories
Echo at 20 weeks gestation showed EA.  Did well at birth and as a baby. By 8 yo need ohs due to enlargement of RA and tiredness from regurgitation. Surgery at UVA unsuccessful. ☺️  4 years later ohs at Children's in Boston. Cone and maz...
Ebsteins Anomaly stories
BUENOS DIAS, SOY UN NIÑO MUY ACTIVO CON ANOMALIA DE EBSTEIN. VIVO EN BOGOTÁ, Y HASTA EL MOMENTO NO HE TENIDO NINGÚN SINTOMA. ESTOY EN CHEQUEOS CADA 6 MESES.   SI TIENEN ALGÚN AMIGO, FAMILIAR O UDTED MISMO TIENE ANOM...
Ebsteins Anomaly stories
Diagnosed before birth,  valve repair, ASD repair, VSD repair and atrial plication at 4 days old.  
Ebsteins Anomaly stories
born with severe EA and no surgical intervention to date. Suffered stroke in 2012from uncloused PFO; Helex repair to prevent future strokes. Fortunate enough to have survived this long; daughter born in 2014 with same Ebstein severity (no surgery to ...
Ebsteins Anomaly stories
I lived for 46 years without knowing that I had Ebstein's Anomaly. When I was little my Dr heard a sound that he diagnosed as Mitral Valve Prolaspe. He put it in my chart but never ordered an echo to verify this thoughts. It wasnt until I had several...

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Ebsteins Anomaly forum

EBSTEINS ANOMALY FORUM

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Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

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Soulmates map