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Story about Ehlers Danlos , 22q13 deletion / Phelan-McDermid Syndrome.

My son was born with EDS, he was diagnosed at 2 and it effects him daily.

May 13, 2016

Ehlers Danlos

22q13 deletion / Phelan-McDermid Syndrome

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My son was born with EDS, he was diagnosed at 2 and it effects him daily.

He he also has episodic ataxia type 6. Only 3 cases have been reported of it.

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