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Nemaline Myopathy
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There are 96 people in the Nemaline Myopathy map
What is the life expectancy of someone with Nemaline Myopathy?
5 answers
Celebrities with Nemaline Myopathy
1 answer
Is Nemaline Myopathy hereditary?
3 answers
Is Nemaline Myopathy contagious?
3 answers
Nemaline Myopathy top 25 questions
Stories of Nemaline Myopathy
STORY
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OUR FOURTH DAUGHTER BORN STARTED TO FAIL AT ABOUT TWO WEAKS THAT WE NOTICED. FIRST WEIGHT LOSS THEN JUST PHYSICALLY WEAKER BY THE MINUTE. UNABLE TO SUCK SWALLOW AND BREATH. THROUGH TESTING AND DIAGNOSIS WE HAVE LEARNED SHE HAS A NEW MUTATION. MUSCLE BIOP
372
8/29/17, 12:33 AM by
Mary Jo Draisma
Views: 372
NEEDLE IN A HAYSTACK
336
8/29/17, 9:09 AM by
Greybeard
Views: 336
NEMALINE MYOPATHY
301
8/29/17, 1:32 AM by
Laura
Views: 301
BRUNA'S STORY
Tenho 20 anos , descobri a Nemalínica com 3 anos de idade através de biópsia. Atualmente sou cadeiras e faço uso de ventilação mecânica nasal .
294
7/20/17, 9:29 PM by
Bruna
Views: 294
IT'S BEEN A LONG ROAD
264
8/29/17, 9:16 AM by
Peter
Views: 264
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Nemaline Myopathy forum
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Statistics of Nemaline Myopathy
5
people with Nemaline Myopathy have taken the SF36 survey. Mean of Nemaline Myopathy is 1666 points (46 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best.
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