Erthromelalgia is broken up into two types. Primary and secondary. Primary Erthromelalgia is basically when you have the disease and aren't really sure how you got it. Secondary Erthromelalgia is when you have another underlying condition that can cause Erthromelalgia. Honestly I think it's just genetics that causes this.
Primary means it is a genetic condition though there are upward of 25 contributory genes. Secondary means it is connected with another disease, like Lupis, or another autoimmune condition.
Some have genetic forms of EM. Others have immune system disorders that seem related. There is correlation with small fiber nerve damage, fluoroquinolones, vascular issues, problems with the size and shape of blood cells, vitamin minerals deficiency
Primary EM is from gene mutations. They do not know all the gene mutations. Secondary EM is from other disabilities causing EM. Look up “Review of primary and secondary erythromelalgia” for a complete list.
My symptoms first started in October of 2010. I began to investigate my symptoms on the internet. After searching I came upon Erythromelalgia and ALL my symptoms matched. I then began my search for a doctor who could and would help me. I fina...
I started getting stange burning in my feet and calves about a year ago. Went to many doctors and had all the test. None could diagnose me. Said probably samll fiber neuropathy even thought the skin biopsy was negagive. Stumbled across the Li...
I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent.
I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.