Exercising is the last thing you want to do when you have Erthromelalgia. Any kind of exertion Can cause flare-ups. Walking very briefly might be okay but that is about it.
Depending on whether you are having a good day or bad day- do not exercise for long periods of time with no breaks as this triggers serious and painful flare ups. Always bring a cold water bottle to hold in your hands to cool them. Don't tie the trainers of your laces too tight
I think it depends upon the person affected. Some can tolerate certain amounts of activity. Some cannot tolerate any. Exercise is important, and there are many non weight bearing exercises you can do while seated. Others have found they can basically desensitize themselves to a certain amount of walking/running daily and do so.
My symptoms first started in October of 2010. I began to investigate my symptoms on the internet. After searching I came upon Erythromelalgia and ALL my symptoms matched. I then began my search for a doctor who could and would help me. I fina...
I started getting stange burning in my feet and calves about a year ago. Went to many doctors and had all the test. None could diagnose me. Said probably samll fiber neuropathy even thought the skin biopsy was negagive. Stumbled across the Li...
I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent.
I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.