What are the latest advances in Erythromelalgia?

Here you can see the latest advances and discoveries made regarding Erythromelalgia.

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Doctors are continuing to come out with new lotions that work for some. Recently they have started working on a way to block the pain receptors from activating which means your skin will still turn red but there will be no pain which would be awesome.

Posted Sep 16, 2017 by Jeff 3050

There are clinical trials going on for Primary Erythromelalgia. Go to the NORD site to see what trials are available

Posted Dec 27, 2017 by mleaver 2500

Some infusions have become more popular to aid patients. These include iloprost and licodane infusions

Posted Apr 4, 2018 by Alys 2500

Aspirin therapy, calcium channel blocker, sodium channel blockers.

Posted Jan 18, 2021 by Kathy Vanicek 2500

There arnt any in the past five years

Posted Aug 14, 2021 by saguaros 3000

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Stories of Erythromelalgia

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MY JOURNEY WITH EM

My symptoms first started in October of 2010. I began to investigate my symptoms on the internet. After searching I came upon Erythromelalgia and ALL my symptoms matched. I then began my search for a doctor who could and would help me. I fina...

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by Tollie Godwin

LIVING WITH A DISABLING CONDITION

I started getting stange burning in my feet and calves about a year ago. Went to many doctors and had all the test. None could diagnose me. Said probably samll fiber neuropathy even thought the skin biopsy was negagive. Stumbled across the Li...

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by Colleen Horton

JACQUES ST JEAN'S STORY

A lot of medication since 5 years Nothing help

794

by Jacques st Jean

LIVE WITH IT

I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent.

770

by Virginia basham

DIAGNOSIS

I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.

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12/17/15, 8:05 AM by Ellen van der Veen

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EYTHROMELGIA

Are there any eythromelgia 'experts' in the uk?

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What are the latest advances in Erythromelalgia?

Here you can see the latest advances and discoveries made regarding Erythromelalgia.

Latest progress of Erythromelalgia

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