What is the life expectancy of someone with Erythromelalgia?

Erthromelalgia cannot kill you however people have committed suicide due to the severe depression of living with this disease everyday and the fact that most people that are diagnosed are told they have a rare disease and when you have no one to talk to and no one who understands what you're going through that makes it very difficult

There is no "standard' life expectancy. It can depend on how long the person has been afflicted and what other conditions they might have.

I don't think this disease medically shortens the life expectancy of a sufferer

I think people with EM live about the same amount of time as those without it. I think depression and the resulting shorter life expectancy is probably the worst complication endangering our lives. Recent vascular studies linking it with Raynauds and they feel that it is reversible in some cases.

I have been diagnosed with EM for over a year. I have a severe case. People who feel the need to separate increase risk in suicide from EM mortality don’t seem to understand that if your face feels like it’s melting, you’d want to die to. Many clinics won’t treat em patients. Saying they don’t want to touch us. Others act like they know and they don’t (like most of these commenters). Let me be VERY clear. EM research is extremely close to none. Having EM means either waiting on a genetic “cure”, waiting for your idiopathic secondary cause to be diagnosed, waiting for your idiopathic secondary cause to be treated, or waiting for proper pain management. The only clinic that I’ve talked to that even offers intravenous lidocaine is Boston pain clinic. Yes. There’s obviously an increased mortality. To say otherwise is ignorant.