7
Living with Erythromelalgia. How to live with Erythromelalgia?
Can you be happy living with Erythromelalgia? What do you have to do to be happy with Erythromelalgia? Living with Erythromelalgia can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Erythromelalgia
If you can avoid having flare-ups and finding a way to not let this disease cripple your way of life then that is an excellent first step. I live in an apartment that is air conditioning 24 hours a day and along with staying hydrated and taking my medications that is really all I can do but anytime during the day where I am not having flare-ups or I am actually able to sleep for a while that makes me happy.
Posted Sep 16, 2017 by Jeff 3050
Keep your extremities cool, watch for a pattern that causes flares, like spicy food, alcohol, too much exercise, and most importantly stay positive.
Posted Dec 27, 2017 by mleaver 2500
Always think positive. Accept some days are going to be bad and deal with them the best you can. Find a doctor who understands your condition and surround yourself with people who want to care about you and want to improve your quality of life. There is no 'quick fix' just managing your disease as best as you can
Posted Apr 4, 2018 by Alys 2500
That is individual to each person. It is the same as any other painful disease. We are still here, we still have our friends and families, our pets. There is hope. There are those of us who live productive lives. Of course we wish we weren’t in pain, but, it will not win. I am in less pain than I was, I am grateful for that.
Posted Jan 18, 2021 by Kathy Vanicek 2500
I don’t have advice for that. If I’m being honest I don’t think you can be happy while your flesh feels like it melts off.
Posted Aug 14, 2021 by saguaros 3000
Is there any homeopathic medications that have worked on anyone?. My daughter is 15yo and was diagnosed last year but has been suffering for about 3 yrs. I am feeling helpless as a mom to find relief for her. I also am having difficulty finding a compound pharmacy in my area that can make a lotion for her hands that has ketamine in it. Any suggestions.
Posted Jan 26, 2022 by JillC 100
Well rn I am having a flare so I am doing quite bad rn. I don’t have it too bad tho, I only get flare ups in the summer and winter so I don’t have it that bad, tho I always when showering have a bit of cold water in the bottom of the tub and put sensitive skin soap and a bit of antiseptic liquid so that my feet don’t start to show symptoms. After I shower I wash my feet of with cold water, dry them quickly and put lotion that has no oil ,vitamin e or e45 work well (tho e45 cream is a bit thick so don’t use to much.) I then put on a fan and then let my feet rest there for 5-15 mins. Also I never put my feet under the covers of my bed.
Posted Dec 13, 2022 by Ivan 200
I lied this has been one of the worst flare ups of my life.
Posted Dec 19, 2022 by Ivan 200
