18

What is the prevalence of Erythromelalgia?

How many people does Erythromelalgia affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Erythromelalgia

Erythromelalgia is a rare condition characterized by episodes of intense burning pain, redness, and heat in the extremities, typically the hands and feet. The exact prevalence of erythromelalgia is not well-established, but it is considered to be a rare disorder. It is estimated that the condition affects approximately 1 to 3 individuals per 100,000 people. Erythromelalgia can occur at any age, but it is more commonly diagnosed in middle-aged or older individuals. The condition can significantly impact the quality of life for those affected, causing chronic pain and disability.

Erythromelalgia is a rare neurovascular disorder characterized by intense burning pain, redness, and heat in the extremities, typically the hands and feet. It is considered a rare condition, making it difficult to determine its exact prevalence. However, studies estimate that the prevalence of erythromelalgia is approximately 1 to 2 individuals per 100,000 population. This means that it affects a relatively small number of people worldwide.

Erythromelalgia can occur at any age, but it is more commonly diagnosed in middle-aged individuals. The condition can be primary, meaning it occurs without an underlying cause, or secondary, where it is associated with other conditions such as myeloproliferative disorders or neuropathies.

While erythromelalgia is rare, it can have a significant impact on the quality of life for those affected. The intense pain and discomfort can limit mobility and daily activities. Treatment options for erythromelalgia focus on symptom management and may include medications, lifestyle modifications, and avoiding triggers that exacerbate symptoms.

It is important for individuals experiencing symptoms consistent with erythromelalgia to consult with a healthcare professional for an accurate diagnosis and appropriate management strategies.
Diseasemaps
6 answers
It affects more women than men and tends to affect older people more then younger people. Erthromelalgia affects 1 in every 100,000 people.

Posted Sep 16, 2017 by Jeff 3050
This is a rare disorder, less that one in 100.000

Posted Dec 27, 2017 by mleaver 2500
1.1 per 100,000 persons. There is no gender specific or age

Posted Apr 4, 2018 by Alys 2500
1 in 100,000
It is now thought to be as high as 15 in 100,000

Posted Jan 18, 2021 by Kathy Vanicek 2500
1.3 per 100,000 a year are diagnosed with it in the US. 0.0013 percent in the US. It effects both but more Afab people than amab. It is common for it to appear first in childhood.

Posted Aug 14, 2021 by saguaros 3000

Prevalence of Erythromelalgia

Erythromelalgia life expectancy

What is the life expectancy of someone with Erythromelalgia?

8 answers
Celebrities with Erythromelalgia

Celebrities with Erythromelalgia

5 answers
Is Erythromelalgia hereditary?

Is Erythromelalgia hereditary?

7 answers
Is Erythromelalgia contagious?

Is Erythromelalgia contagious?

7 answers
Natural treatment of Erythromelalgia

Is there any natural treatment for Erythromelalgia?

8 answers
ICD9 and ICD10 codes of Erythromelalgia

ICD10 code of Erythromelalgia and ICD9 code

7 answers
Living with Erythromelalgia

Living with Erythromelalgia. How to live with Erythromelalgia?

9 answers
Erythromelalgia diet

Erythromelalgia diet. Is there a diet which improves the quality of life of...

7 answers

World map of Erythromelalgia

Find people with Erythromelalgia through the map. Connect with them and share experiences. Join the Erythromelalgia community.

Stories of Erythromelalgia

ERYTHROMELALGIA STORIES
Erythromelalgia stories
My symptoms first started in October of 2010.  I began to investigate my symptoms on the internet.  After searching I came upon Erythromelalgia and ALL my symptoms matched.  I then began my search for a doctor who could and would help me.  I fina...
Erythromelalgia stories
I started getting stange burning in my feet and calves about a year ago.  Went to many doctors and had all the test.  None could diagnose me.  Said probably samll fiber neuropathy even thought the skin biopsy was negagive.  Stumbled across the Li...
Erythromelalgia stories
A lot of medication since 5 years Nothing help  
Erythromelalgia stories
I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent. 
Erythromelalgia stories
I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.

Tell your story and help others

Tell my story

Erythromelalgia forum

ERYTHROMELALGIA FORUM
Erythromelalgia forum
Are there any eythromelgia 'experts' in the uk?

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map