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What are the best treatments for Erythromelalgia?

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Erythromelalgia treatments
8 answers
Work with your doctor and know your triggers.

Posted Apr 12, 2017 by Christina 200
I have trialled a neurostimulator that seemed to be successful and am about to get the implant. Fingers crossed it suppresses the pain for a few years because nothing else has worked

Posted Aug 9, 2017 by Anne-Marie 400
Aspirin, Gabapentin, Lyrica, Tramadol, cymbalta, lots of air conditioning

Posted Sep 16, 2017 by Jeff 3050
Observe your symptoms, bring pictures of your flares to doctors, find supportive docs and practitioners, find other support sites, and stay informed, find cooling products

Posted Dec 27, 2017 by mleaver 2500
Compression gloves/socks
Ice packs
Pain relief medication

Posted Apr 4, 2018 by Alys 2500
There are many tests to determine why you have erythromelalagia. There are a small number of cases that may be reversed based upon sorting out the original cause. Bobs Protocol works wonders for many people. There are many different avenues to explore with prescription treatments. From anti seizure meds to calcium channel blockers, sodium channel blockers, vitamin and mineral regimens to bolster deficiencies. Spinal cord stimulators are used by some to block pain signals.

Posted Jan 18, 2021 by Kathy Vanicek 2500
It depends where the flair is. For my face flair the ketamine cream works well. I’m hoping that when I get intravenous lidocaine it’ll be a more long term solution.

Posted Aug 14, 2021 by saguaros 3000
Various drugs, eg, the sedating ones, Amitriptyline, Gabapentin, Pregabalin .... personally I couldn’t tolerate, Duloxetine reduces symptoms without sedation.
Bob’s protocol, (hot water soak) worth a try ... I know, last thing we want to do when feet are burning, I was truly beyond desperate at this stage

Posted Oct 8, 2021 by Carol 500

Erythromelalgia treatments

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World map of Erythromelalgia

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Stories of Erythromelalgia

ERYTHROMELALGIA STORIES
Erythromelalgia stories
My symptoms first started in October of 2010.  I began to investigate my symptoms on the internet.  After searching I came upon Erythromelalgia and ALL my symptoms matched.  I then began my search for a doctor who could and would help me.  I fina...
Erythromelalgia stories
I started getting stange burning in my feet and calves about a year ago.  Went to many doctors and had all the test.  None could diagnose me.  Said probably samll fiber neuropathy even thought the skin biopsy was negagive.  Stumbled across the Li...
Erythromelalgia stories
A lot of medication since 5 years Nothing help  
Erythromelalgia stories
I can't remember a time when I didn't have hot feet. I haven't been diagnosed, but my sister has. I also have neuropathy. My feet look black most of the time and I just had an ultrasound and doplar done only to find my circulation is excellent. 
Erythromelalgia stories
I was diagnosed in 2015 bij the Academisch Ziekenhuis Maastricht (academical hospital in Maastricht, netherlands). After a 1,5 year journey of searching for answers. I love to be in Facebook support groups, they really get what I am going through.

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Erythromelalgia forum

ERYTHROMELALGIA FORUM
Erythromelalgia forum
Are there any eythromelgia 'experts' in the uk?

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