A thorough understanding of the disease
education on my condition
regular physical exercise
Supplements - Turmeric, magnesium, hyaluronic acid, vit D omega 3.
Drinking cannibus oil every night for the pain
Ee will have a baby with my husband till thia year
Exercise (when my joints aren't hurting too badly).
sangria
Regular venesections
venesection
Fazer exercícios físicos
It's fine to eat red meat
Eat fruit away min 2 hours away from meal
Change in diet to eat healthier and lost 67 lbs.
Gluten free
Walking and going to the gym
restricting refined sugar
Excercise
dejar de fumar
Join your national support group and learn about your condition
being pro-active in my disease management: tumeric, new treatement testing in Paris
Have a morphine pump implanted (anno 2015 the 5th pump).
Ferritin at Diagnosis 5014
Limited red meat to once a week
Working with a hematologist helped to achieve state of maintenance.
I was diagnosed on 4/27/2017, with 2 gene mutations.
Bleed a lot.
Able to take naps when feeling exhausted
I attend hospital for regular venesections
Rating less red meat.
hydration
Weight loss
Meds
Be your own advocate and never stop questioning.
Knowing there are others who have my condition
walking a little each day loosens my joints
Family support
Understanding the condition
Almost no alcohol
Understanding family
Getting my ferritin under 50
Sleep
Adjusting my diet to contain no red meat to limit my iron intake.
Being diagnosed early on before major issues normally would have started.
Low carbohydrate diet.
giving blood
Começar um tratamento antioxidante
Support from my partner and family
Stop smoking, eat healthy
Self-esteem in that my blood is used