Which are the symptoms of HFE hereditary haemochromatosis?

See the worst symptoms of affected by HFE hereditary haemochromatosis here

HFE hereditary haemochromatosis symptoms
13 answers
The worst symptoms occur when very high levels of excess iron are stored in the body. These can include liver cirrhosis, cancer, cardiomyopathy, arthritis and diabetes. Earlier symptoms include chronic fatigue, joint pain, abdominal pain, sexual dysfunction and discoloration of the skin (deep tan or grey pallor).

Posted May 20, 2017 by Tony Moorhead 2051
This is very personal and to me it's fatigue, together with the blood sampling (every week for 2,5 years around a 500 cc each time). Si have stopped after a few times, witch is silly!

Posted Jun 3, 2017 by bewiki 4317
Fatigue, joint pain,moodiness, headaches

Posted Jul 22, 2017 by Tina 1501
This answer probably varies from person to person, but for me the fatigue has been the worst part.

Posted Jul 22, 2017 by alohaitsaj 1501
Mild symptom = fatigue

Moderate = abdominal pain

Severe = severe liver, heart or other organ disease or cancers

Posted Jul 22, 2017 by Salena 2001
Fatigue and joint pain are the most common symptoms. The fatigue is the worst as it never seems to go away even with venesections.

Posted Jul 23, 2017 by Lorna 701
Loss of libido

Posted Jul 23, 2017 by Warbychick 1901
Joint pain

Posted Jul 23, 2017 by Stacy 550
Extreme tiredness, joint pains, Osteoarthritis, Chondrocalcinosis, Osteporosis, loss of libido, pancreas problems which lead to Diabetes Mellitus, Gonadal failure, Hypogonadism, erectile dysfunctions, heart problems, arrhytmia or irregular heartbeat, breathlessness when more active than usual, swelling in legs, ankles and feet, liver problems, cirrhosis, liver cancer, depressions and mood swings, brain fog, +++

Posted Jul 25, 2017 by Ketil Toska 2051
Constant Pain, Migraines

Posted Aug 2, 2017 by Natalie 2000
acky joints and exhausion

Posted Sep 8, 2017 by Eileen 700
Arthritis, fatigue, stomach problems

Posted Apr 1, 2018 by Aimee 300
Translated from french Improve translation
Joint pain fatigue

Posted Jul 24, 2017 by Franck 200

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World map of HFE hereditary haemochromatosis

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Stories of HFE hereditary haemochromatosis

HFE hereditary haemochromatosis stories
Discover as one of the first in Bergen, Norway. Both my brothers were caught because of me. Become the first blodd donor with Haemochromatosis on Haukeland sykehus. Have 1round 130 accepted blood donations and the double for sience.. Very happy to b...
HFE hereditary haemochromatosis stories
I originally come from Kiel, Germany and moved to the UK in 1985. In 2005, I was finally diagnosed with Hamochromatosis which has affected my joints very badly. After having been venesected for about 6 months in 2005/2006, the arthritis got worse I ...
HFE hereditary haemochromatosis stories
Until March 2016 I did not know I had haemochromotosis, but the signs and symptoms have been there for three years chronic fatigue, aching joints, lack of libido and at times crankier than normal being a working mum of two teenage girls and a wife of...
HFE hereditary haemochromatosis stories
I was feeling sick and went to my GP, who said I need some ferritin tablets and calsuim, well I got it and drank it , like my Gp told me, the following day I started icthing, then it sarted out with big red marks on my arms and all over my body, phon...
HFE hereditary haemochromatosis stories
I was diagnosed three years ago after both my parents tested positive for the HHC genes. My Dad is a C282Y carrier but my mum is Homozygous with 2 copies of the H63D gene, which was sadly diagnosed far too late. Both my sister and myself are Compound...

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