A Hidradenitis Suppurativa interview , Stevens Johnson Syndrome.

Nicola1985's interview


How did all start?

Had for as long as can remember diagnosed 9 years ago

Do you already have a diagnosis? How long did it take you to get it?

9 years ago

For what medical specialties have you been treated? What has been the most useful specialty for your?

Tried all sorts nothing helped

What has been the most useful thing for you so far?

Silver

What have been your biggest difficulties?

Wearing a bra

How has your social and family environment reacted? Have your social or family relationships changed?

Supportive

What things have you stopped doing?

Refused to have hs stop me being me

What do you think about the future?

Each day as it come s

So far, which years have been the best years in your life? What have you done during them?

Nusrinc degree complete

If you had to describe your life in a sentence, what would it be?

Painful but just keep going

Finally, what advice would you give to a person in a similar situation?

Hold head up high


Oct 5, 2017

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