Dawud was born with TCHD . At first we didn't know anything about this disease. He is 7 yrs old and has had 5 surgeries so far. He now has adhesion problem as well. He has done;
ileostomy at birth
Pull through at 7 mnths
Adhesion removal at 4 yrs
And again ileostomy and ileostomy closing after 6 months. At this time his stomach got bloated, there was a narrow segment which doctors didn't know why it was there.
And now again he is struggling with dialeted intestine and pain. Doctor advised to do irrigations. Hope Dawud feels better soon.... Worst problem for us is we don't get good medical help here in our country.