Can people with Intracranial Hypertension work? What kind of work can they perform?

See how people with experience in Intracranial Hypertension give their opinion about whether people with Intracranial Hypertension can work and what kind of jobs are more appropriated for people with Intracranial Hypertension

Posted Feb 21, 2017 by Kate 1052

I unfortunately do not work due to iih however the uk government to not see me fit to get payment and iih is bad enough to the point someone else is typing all this.

Posted Feb 21, 2017 by Reagan 300

Yes. Office bound

Posted Feb 21, 2017 by Colleen 1000

Yes, for me though memory loss is a big problem, as well as fatigue so I can't hold a normal 8 hour position. I do well with small cleaning jobs.

Posted Feb 21, 2017 by Bloomingbeauti 1102

Sure. It's all about the disease effects you. IH can effects anyone at anytime for any reason. In my case unfortunately no I can no longer work. But I know of lawyers and doctors. Nurses and students. Paramedics. Triathletes.

Posted Feb 21, 2017 by Deirdra 1000

Yes, intracranial hypertension sufferers can work depending on the severity of their symptoms. Work which raises CSF pressure may not be desirable or that which worsens visual disturbances or high pressure headaches.

Posted Feb 21, 2017 by Amy 1495

I was able to work at first but at the moment i am unemployed. My symptoms got too agressive and i ended up needing time off for surgeries. I was never able to return to work after the surgery.

Posted Feb 21, 2017 by Heather 351

It all depends on the severity of their symptoms. For me I worked undiagnosed for years before the headaches got unbearable. I work in a call center environment so it wouldn't be a good idea with the headaches.

Posted Feb 22, 2017 by Kathleen 450

Yes. Depending on the severity of their symptoms. Should a person be experiencing vision loss, it will obviously limit tasks/work that can be performed. I think 90% of people work in any field.

Posted Feb 22, 2017 by Alet 1002

Yes. It all depends on the severity of their symptoms. Some people find they are ready to go after their Neuro surgery or finding their magical medication dosage. Others can only do part time and some can't work at all. But I've seen nurses, lawyers, office type jobs, daycare and teachers all work. It depends on the person.

Posted Feb 22, 2017 by leighrach 750

Some people try and work until they are unable. People with IIH hold any and all types of jobs.

I am on permeant disability. More and more people that I know in the IIH group I am I are trying to get disability as they are no longer able to work.

Posted Feb 23, 2017 by Diane 1053

Some people can work and others cannot. Because it's an invisible illness as well as a chronic pain condition employers in general don't tend to understand so having info for them to read from credible sources will give them a better idea as to why some days are worse than others or why you need time off after a lumbar puncture

Posted Feb 23, 2017 by Rhiannon 450

Some can, some can't. It depends on how bad your condition is affecting you.

Posted Feb 24, 2017 by Maryssa 2100

I was a student when I was diagnosed (medical student) and now I am doctor, for me I had lot of pressure both educational and work. But nothing affected me much.. but yes definitely because of medication I use to feel sleepy and lethargic all day... which at time potassium also didn't help.!

Posted May 18, 2017 by Dr.M 701

Yes with limitations

Posted May 29, 2017 by Talitha 400

Yes, a person with Intracranial Hypertension can still work but their work load may be limited.
Living with Intracranial Hypertension comes with lots of specialist appointments, surgical procedures etc.
Some people with Intracranial Hypertension can work just as anyone else can but for some people, their symptoms can be worse than other people therefore making work a lot more difficult.

Posted Aug 11, 2017 by hannah.l18 1100

It depends a lot in the severity of the illness and how well it's controlled. Many people can live normal lives.

Posted Aug 12, 2017 by Brianna 300

Some people can work, if they have their idiopathic intracranial hypertension under control. But, they may have to take more time off , or breaks due to Doctors visits, or sick days. They probably won't be able to scuba dive, fly planes, or do anything dangerous unless they are cleared by their Neurologist.

Posted Aug 12, 2017 by Christy 850

Yes! As long as it's being treated or you're not symptomatic. People with Intercranial hypertension can do anything their physical health allows them to. If you're extremely symptomatic, then maybe work from home.

Posted Aug 13, 2017 by LaurynPatterson 1750

Some can. Depends widely on their symptoms. Vision loss is the main concern. It is based solely on the individual and how they are affected and what type of job they are trying to perform.

Posted Aug 15, 2017 by Mommy2Five 1500

A lot can carry on as normal it depends on the severity on how it affects you. I had to give up work eventually. Because I had my second shunt and it failed and it left me with nerve damage and Co stand back pain. And the I H gives me vision problems memory loss. Balance problems. And sickness. So was unfit to work

Posted Aug 15, 2017 by Lynne 1600

Because of damage to ny body fron so many surgeries and the memory loss from all the medications I can not work but people with Intracranial Hypertension work everyday. If you have a shunt I wouldnt suggest hard physical labor for work because of the chances of it breaking but anything else is fine

Posted Aug 18, 2017 by Unique cheatom 2120

I so admire anyone who can! I am 57 years old so I really can't. I raised 4 children when I was younger (my youngest is a senior this year) and was fortunate my husband didn't need me to work. My IH is severe and I have an LV and VP shunt and also take Diamox, Trokendi and several other meds to help control the IH. I am in bed lots during the day due to extreme fatigue. I really wish I was able to do more but it just isn't realistic for me

Posted Sep 9, 2017 by Linda 200

Working from home or self employed which means your able to work at your own pace

Posted Oct 16, 2017 by Melanie 600

I would say jobs are limited because the illness is so unpredictable in my experience a headache or vomiting even vision loss can accure at any time any day

Posted Oct 18, 2017 by Sara 2000

Yes they can work, any work depending on ability

Posted Oct 19, 2017 by Julie 2000

Yes, I work in an office normally as I did before diagnosis.

Posted Oct 20, 2017 by Sarah 500

40 percent work in any given field. 60 % are on disability.

Posted Oct 28, 2017 by lisa 3365

It depends on the person and severity of the condition.

Posted Oct 29, 2017 by So 2000

I work part time, study part time and am involved in many volunteer activities so effectively work a 10-12 hour day usually. Some people are not able to leave their house. So it really depends on you & your particular set of symptoms, medication side effects, and tolerance. Everyone is unique. Never see this condition as a limitation until you have tried your best!!

Posted Oct 29, 2017 by Annie 200

Depending on the person, how they are affected and the job.

Posted Oct 29, 2017 by Dotty 450

Many people with intracranial hypertension can continue to work in a variety of fields, however some find it difficult depending on their symptoms and side effects of medications. Fatigue and cognitive/short term memory issues are the major concerns, particularly driving. Many individuals find part time work more appropriate to their needs.

Posted Feb 18, 2018 by Kelly 2560

Depends on symptom, some people who have daily headaches find it hard to leave home so going to work isn't always something you can do.

Posted Feb 18, 2018 by Tiffany-Diane 400

Yes depending on what they feel necessary

Posted Feb 18, 2018 by Sarahhxoxx 700

Yes some can depending on the level of pain they have.

Posted Jul 12, 2018 by Michelle 2050

Translated from spanish Improve translation

Any work that does not require force or drive

Posted Jun 7, 2017 by Lo 2000

Translated from portuguese Improve translation

The type of work depends on the after-effects...
Remembering that not all people are left with sequelae if the treatment is fast.