The Advice we would give is that it comes a large challenge, you will have to adapt each time the disease affect, being physical fitness because the deterioration will be more difficult to do something that you normally would, and adaptation mental because may not be able to leave that you shake and never give up. It's complicated you know that you have a disease that gets worse with time despite being slow, just think that God is with you and not he will give up, have strength and be happy as much as possible.