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Which advice would you give to someone who has just been diagnosed with Limb-girdle muscular dystrophy?

See some advice from people with experience in Limb-girdle muscular dystrophy to people who have just been diagnosed with Limb-girdle muscular dystrophy

Limb-girdle muscular dystrophy advice
1 answer
Translated from portuguese Improve translation
The Advice we would give is that it comes a large challenge, you will have to adapt each time the disease affect, being physical fitness because the deterioration will be more difficult to do something that you normally would, and adaptation mental because may not be able to leave that you shake and never give up. It's complicated you know that you have a disease that gets worse with time despite being slow, just think that God is with you and not he will give up, have strength and be happy as much as possible.

Posted Oct 29, 2017 by Ueversonsp 100

Limb-girdle muscular dystrophy advice

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Stories of Limb-girdle muscular dystrophy

LIMB-GIRDLE MUSCULAR DYSTROPHY STORIES
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Hi there,   My name is Pascal, i am 28 years old and was born in The Netherlands where i still live. I all ready was late with everything, walking, sitting and at the age of 6 i was diagnosed with a no name muscular dystrophy. First time it was em...
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I started having problems at 17 I couldn't handle walking downhill if I was running about or took a wrong footing my knee would pop out and it was happening more and more frequently. I was told I needed to go to the gym, do more exercise by doctors a...
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My best friend Małgorzata Gorczyca-Antosz (a woman with the biggest heart and an unbelievably talented painter) has LGMD, limb-girdle muscular dystrophy, a progressive genetic disorder. Małgorzata has been gradually losing the ability to do basic t...
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My name is James, I go by Tony. In high school I could always tell that there was something about me a little different but never thought much of it. I always played sports was very active but was always a little behind everyone else. In 2002 I had a...

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