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Which advice would you give to someone who has just been diagnosed with Mastocytosis and MCAS?
See some advice from people with experience in Mastocytosis and MCAS to people who have just been diagnosed with Mastocytosis and MCAS
Welcome to the club no one wants to join. Journal your triggers. Stay on your treatment protocol. TMSforacure. org is a very helpful group!
Posted Sep 30, 2017 by Meredith 2000
You can improve your symptoms an enormous amount without any help from a doctor. You will HAVE to make lifestyle changes with this condition. These lifestyle changes can be many and far-reaching. For example, I am very limited in how much time I can spend outside of my house because of my fragrance and tobacco allergies.
Posted Dec 9, 2019 by Gramarye 700
Translated from portuguese
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Initially, and devastating and so very sad and what you read on the internet and truly scary. Seek answers,seek help, don't give up, don't surrender. I know that's not easy but it all depends on us and our doctors. We are a team and he helps me on what I need and I ajudoo to know more about this disease to help others like me. Do not allow them to treat you as a sick or incapacitated. Each case and a case and we have to live one day at a time.Life becomes tãoais easy and happy after we accept our condition.
Posted Mar 3, 2017 by elsa oliveira 1000
