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Can people with Mastocytosis and MCAS work? What kind of work can they perform?
See how people with experience in Mastocytosis and MCAS give their opinion about whether people with Mastocytosis and MCAS can work and what kind of jobs are more appropriated for people with Mastocytosis and MCAS
The severity of your disease will determine your mobility, and ability to work. Personally, I work 40+ hours in a leadership role. There are days where I can't get out of bed, brain fog is embarrassing when you are presenting and can't remember the simple word you know, it's hard to be social some days.
I know other Mastos who can't leave their house without a mask. During a repetitive outbreak, some sleep for days, can't eat, who have issues with their blood pressures at dangerous lows. There are many other diseases linked to Mastocytosis that make life limiting.
Again, journaling your symptoms and treatments will help you treat your self during specific outbreaks. Listen to your body. If you think you need help, don't be afraid to call 911 or use your EPI. Most importantly, train your co-workers what to do to help you.
I know other Mastos who can't leave their house without a mask. During a repetitive outbreak, some sleep for days, can't eat, who have issues with their blood pressures at dangerous lows. There are many other diseases linked to Mastocytosis that make life limiting.
Again, journaling your symptoms and treatments will help you treat your self during specific outbreaks. Listen to your body. If you think you need help, don't be afraid to call 911 or use your EPI. Most importantly, train your co-workers what to do to help you.
Posted May 20, 2017 by Teepee80 500
Some can. Those of us that trigger to fragrance and common environmental things find it much more difficult to be in public.
Posted Sep 30, 2017 by Meredith 2000
This one is difficult- I have had times where I could and times where I can’t. Currently I do but it is not easy and I only work 3 days.
Posted Jan 19, 2018 by Melissa Ashby 1020
Translated from portuguese
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Can work provided that the work does not expose the reagents that may release mastocitos or your own employee/patient be able to work around stressful situations.
In short you can work since the patient feels well and is able to work in a controlled environment the level of tactile stimuli.
In short you can work since the patient feels well and is able to work in a controlled environment the level of tactile stimuli.
Posted Mar 3, 2017 by elsa oliveira 1000
