Story about Multiple Systems Atrophy .

Lloyds Story

Jul 9, 2017

By: Laura


Lloyd stopped having a normal night of sleep about 2005.  Around 2014 he noticed he could not Wright anymore and talking was harder. He had started falling and this was concerning him. He moved in with me (his sister Laura) on June 28th, 2015.  On July 1 of that year we started trying to find out what was going on with his health.  Four MD's and Three Neuroligists later, in February of 2017 we saw a movement specialist.  He was diagnosed with MSA.  

Lloyd's falling has gotten so bad he uses a walker and some days a wheel chair.  His swallowing of thin liquids is very difficult.  So we  make fruit and vegetable smoothies.  He no longer feels hunger pain, and his pain level is extremely high.  His right side wants to (arms & legs) to curl up.  Lloyd works out to keep muscles strong to combat this.

I refuse to let him just dwindle away as his Dr said he would.  And in that note we are going to Dallas, Texas to see the Movement Specialist at UT Southwestern.  I have heard they have research meds.  I pray they find a cure!

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