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Can people with Multiple Systems Atrophy work? What kind of work can they perform?

See how people with experience in Multiple Systems Atrophy give their opinion about whether people with Multiple Systems Atrophy can work and what kind of jobs are more appropriated for people with Multiple Systems Atrophy

Multiple Systems Atrophy jobs

Can people with Multiple Systems Atrophy work? What kind of work can they perform?


Multiple Systems Atrophy (MSA) is a rare neurodegenerative disorder that affects the autonomic nervous system and movement. It is a progressive disease that can significantly impact a person's daily life and abilities. While the symptoms and progression of MSA can vary from person to person, it is important to consider the individual's capabilities and limitations when determining their ability to work.


Due to the nature of MSA, which affects various bodily functions, individuals with this condition may face challenges in maintaining employment. The severity and progression of symptoms can make it difficult to perform certain tasks or meet the demands of a traditional work environment. However, it is important to note that each person's experience with MSA is unique, and some individuals may still be able to work, at least in the early stages of the disease.


Factors influencing workability:


Several factors can influence an individual's ability to work with MSA:



  • Stage of the disease: MSA is a progressive disorder, and as it advances, it can lead to increased disability and limitations. In the early stages, individuals may be able to continue working, but as the disease progresses, they may find it increasingly challenging to perform their job duties.

  • Symptoms: MSA can cause a wide range of symptoms, including motor impairments, autonomic dysfunction, and cognitive changes. The specific symptoms experienced by an individual can greatly impact their ability to work. For example, motor impairments may affect dexterity and coordination, making it difficult to perform tasks that require fine motor skills.

  • Functional limitations: Depending on the severity of their symptoms, individuals with MSA may experience functional limitations that affect their ability to perform certain job tasks. These limitations can include difficulties with mobility, balance, speech, and swallowing, which may impact their ability to engage in physical or communication-intensive work.

  • Supportive measures: The availability of supportive measures and accommodations in the workplace can greatly influence an individual's ability to continue working. Reasonable accommodations, such as flexible work hours, modified job duties, or assistive devices, can help individuals with MSA overcome certain challenges and continue to be productive in their work.


Possible work options:


While the progression of MSA can limit the types of work individuals can perform, there are still potential work options that can be explored:



  • Sedentary or desk-based jobs: Individuals with MSA who experience minimal mobility limitations may be able to perform sedentary or desk-based jobs. These can include administrative tasks, data entry, customer service, writing, or other roles that primarily involve working with a computer or phone.

  • Remote or flexible work: With the increasing availability of remote work options, individuals with MSA may be able to work from home or have flexible work arrangements. This can help accommodate their specific needs and limitations while still allowing them to contribute to the workforce.

  • Consulting or freelance work: Some individuals with MSA may choose to pursue consulting or freelance work in their area of expertise. This can provide more flexibility in terms of work hours and workload, allowing them to manage their symptoms while still utilizing their skills and knowledge.

  • Advocacy and support roles: Individuals with MSA may find fulfillment in advocacy and support roles within organizations or communities that focus on neurodegenerative diseases. This can involve raising awareness, providing support to others with similar conditions, or participating in research and fundraising efforts.


Conclusion:


While the progression of Multiple Systems Atrophy can present challenges for individuals in maintaining employment, it is important to consider each person's unique circumstances and abilities. The stage of the disease, specific symptoms experienced, functional limitations, and availability of supportive measures all play a role in determining an individual's workability. Exploring options such as sedentary jobs, remote work, consulting, or advocacy roles can provide opportunities for individuals with MSA to continue working and contributing to society in a meaningful way.


Diseasemaps
6 answers
No. There is no movement possible. Also speech is slow and writing is impossible.

Posted Jul 9, 2017 by Mary 1000
Multiple system atrophy is a very disabling condition. Most people find they are unable to work due to the severity of symptoms. Multiple system atrophy is on the US Social Security Compassionate Care Allowance list of severely disabling conditions. See this link for the description: https://secure.ssa.gov/poms.nsf/lnx/0423022630

Posted Jul 11, 2017 by Pam Bower 2952
In the beginning they could depending of the speed the disease is progressing

Posted Jan 4, 2018 by Jan 1500
In the early days, they can typically perform office work or any work where a falling risk is not prohibative. As the disease progresses, the challenges faced are the mobility limitations. Towards the end, speech issues might make most work extremely challenging.

Posted Mar 23, 2018 by [email protected] 3020
Translated from spanish Improve translation
Can do some jobs on-line, at the beginning of the disease, but as the disease progresses it is best to avoid stress, which the person does not labor

Posted May 10, 2017 by Lorena 1000

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MULTIPLE SYSTEMS ATROPHY STORIES
Multiple Systems Atrophy stories
I was a carer to my sister Maureen who passed away from MSA in April 2014. I am more than happy to talk to anyone re: this disease (Multiple System Atrophy) & point them in the right direction for further information, or to just lend an ear if someon...
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It didn't seem like much of a disease when it started. I was in my 50s when dizziness arrived, not occasional dizzy spells but an almost constant sense of being on the deck of a boat. I began to stumble once in a while, and later on I had trouble sta...
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My story is really my family's story. In 2010, after a year or so of steadily more frequent falls and dropping things and such. Many different Doctor appointments and being told, "You drink too much", "You abused your body too much when you were you...
Multiple Systems Atrophy stories
My mom , Khadija , was diagnosed with Parkinson's disease in 2011 due to difficulty in fine movements like inserting a key into the keyhole in the car. Mom was not responsive to medications prescribed by her neurologists nor did she have a unilateral...
Multiple Systems Atrophy stories
THERE WAS NOTHING UNUSUAL DURING MY CHILDHOOD, OTHER THAN BEING THE OLDEST CHILD WITH TWO ALCOHOLIC PARENTS AND THE RESPONSIBILITY THAT ENTAILS. AS A YOUNG ADULT I PUT MYSELF IS A HIGH STRESS LIFESTYLE. A YOUNG DIVORCEE SINGLE MOM WORKING MULTIPLE J...

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Multiple Systems Atrophy forum

MULTIPLE SYSTEMS ATROPHY FORUM
Multiple Systems Atrophy forum
Does anyone with MSA experience the sensation like you are "bobbing up and down" on a boat?  I experience this most of the time.  It tends to lessen by standing up or laying down!  If so, do you know what it is?   
Multiple Systems Atrophy forum
Anyone with this? Hoe is it? https://clinicaltrials.gov/ct2/show/NCT02388295?term=msa&rank=4
Multiple Systems Atrophy forum
Thanks for adding your marker to the World MSA map. If you know others from the various MSA forums please encourage them to do the same. Did you know... A 57 page booklet of MSA information is available to download from the MSA Coalition website.&nbs...
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When: October 14 - 15, 2016 Where: New Orleans, Louisiana, USA Register now and get your FREE ticket at Http://www.MultipleSystemAtrophy.org Tentative Conference Schedule Many thanks to this year’s medical host, David Houghton, M...
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Chicago and area MSA support group meeting April 17th 2-4PM Goodwill Crystal Lake - 1016 Central Park Drive, Crystal Lake, IL. Contact John Standley [email protected] 815-403-2221

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