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Is it easy to find a partner and/or maintain relationship when you have Multiple Systems Atrophy?

People with experience in Multiple Systems Atrophy give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Multiple Systems Atrophy. What are the possible difficulties in having a relationship?

Couple and Multiple Systems Atrophy
2 answers
It's possible to find a loving partner no matter what your physical abilities. Reach out for support from others and don't isolate yourself. Here is one MSA discussion group open to anyone around the world: groups.yahoo.com/group/shydrager

Posted Jul 11, 2017 by Pam Bower 2952
OK guys, here is the important fact. This disease impacts the autonomic function, and there are few things more dependent upon the autonomic system than developing and maintaining an erection.

But there are few things more impotant than a healthy relationship, with or without sex.

My husband used to take care of me. Today I take care of him, including helping him with a BM, condom catheter, and bathing him. While our expression of love has changed, our love for one another has not.

Posted Mar 23, 2018 by [email protected] 3020

Couple and Multiple Systems Atrophy

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World map of Multiple Systems Atrophy

Find people with Multiple Systems Atrophy through the map. Connect with them and share experiences. Join the Multiple Systems Atrophy community.

Stories of Multiple Systems Atrophy

MULTIPLE SYSTEMS ATROPHY STORIES
Multiple Systems Atrophy stories
I was a carer to my sister Maureen who passed away from MSA in April 2014. I am more than happy to talk to anyone re: this disease (Multiple System Atrophy) & point them in the right direction for further information, or to just lend an ear if someon...
Multiple Systems Atrophy stories
It didn't seem like much of a disease when it started. I was in my 50s when dizziness arrived, not occasional dizzy spells but an almost constant sense of being on the deck of a boat. I began to stumble once in a while, and later on I had trouble sta...
Multiple Systems Atrophy stories
My story is really my family's story. In 2010, after a year or so of steadily more frequent falls and dropping things and such. Many different Doctor appointments and being told, "You drink too much", "You abused your body too much when you were you...
Multiple Systems Atrophy stories
My mom , Khadija , was diagnosed with Parkinson's disease in 2011 due to difficulty in fine movements like inserting a key into the keyhole in the car. Mom was not responsive to medications prescribed by her neurologists nor did she have a unilateral...
Multiple Systems Atrophy stories
THERE WAS NOTHING UNUSUAL DURING MY CHILDHOOD, OTHER THAN BEING THE OLDEST CHILD WITH TWO ALCOHOLIC PARENTS AND THE RESPONSIBILITY THAT ENTAILS. AS A YOUNG ADULT I PUT MYSELF IS A HIGH STRESS LIFESTYLE. A YOUNG DIVORCEE SINGLE MOM WORKING MULTIPLE J...

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Multiple Systems Atrophy forum

MULTIPLE SYSTEMS ATROPHY FORUM
Multiple Systems Atrophy forum
Does anyone with MSA experience the sensation like you are "bobbing up and down" on a boat?  I experience this most of the time.  It tends to lessen by standing up or laying down!  If so, do you know what it is?   
Multiple Systems Atrophy forum
Anyone with this? Hoe is it? https://clinicaltrials.gov/ct2/show/NCT02388295?term=msa&rank=4
Multiple Systems Atrophy forum
Thanks for adding your marker to the World MSA map. If you know others from the various MSA forums please encourage them to do the same. Did you know... A 57 page booklet of MSA information is available to download from the MSA Coalition website.&nbs...
Multiple Systems Atrophy forum
When: October 14 - 15, 2016 Where: New Orleans, Louisiana, USA Register now and get your FREE ticket at Http://www.MultipleSystemAtrophy.org Tentative Conference Schedule Many thanks to this year’s medical host, David Houghton, M...
Multiple Systems Atrophy forum
Chicago and area MSA support group meeting April 17th 2-4PM Goodwill Crystal Lake - 1016 Central Park Drive, Crystal Lake, IL. Contact John Standley [email protected] 815-403-2221

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