Living with Noonan Syndrome. How to live with Noonan Syndrome?
Can you be happy living with Noonan Syndrome? What do you have to do to be happy with Noonan Syndrome? Living with Noonan Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Noonan Syndrome
yes, you can be happy living with NS! you have to let yourself be happy. do not let your condition define who you are as a person. NS is not a death sentence. I had to learn that the hard way. I felt life was dismal because I had to devote so much of my time and energy to a child with NS. she is a special gift to make me realize this life is short and to be happy and enjoy it. use it to educate those around you and give them hope and purpose
i was born premature to a mom who lived a very unhealthy lifestyle so even though I was really small and sick, no one really thought much of it.
soon they had to take it seriously because I was only getting worse not better. The older I got, the...
My Little Lily was born in 2016. She is a twin. Her sisters name is Anna. We all got a surprise when Lily was born as we were expecting her to be a 7.5lb baby but she was only 4lbs14oz. She had trouble feeding as she wouldn't latch and then her blood...
my name is bree. my daughter and fiance have noonan syndrome. Arraya was diagnosed at 6 weeks of age with failure to thrive, supravalvular pulmonary stenosis, bilateral cleft palette, poor latch on. the first year of her life we traveled...
I was diagnosed at age 12 because of my short stature. I have a cardiac malformation but not usually related to Noonan syndrom. I'm small but at least the same height as my parents, 5 feet 6 inches ! The geneticist found right away which syndrom I ha...