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Living with Osteopetrosis. How to live with Osteopetrosis?
Can you be happy living with Osteopetrosis? What do you have to do to be happy with Osteopetrosis? Living with Osteopetrosis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Osteopetrosis
Lots of pain killers. Have the hope to find an early cure. Want to live!!!! Love life!!!
Posted May 17, 2017 by María Ximena 1071
Live carefully. Know your limits. I am perfectly happy not climbing a rock wall or running. I am perfectly happy riding my 3 wheel bike, fishing, going to museums and national parks. The mind controls happiness and my happiness is from God. Trust God and he will give you happiness.
Posted Jul 26, 2017 by Chuck 2001
Living with Osteopetrosis is great. You just need to know your own personal physical at limitations and stick within them. I enjoy my life, I don't let my disease dictate what I can and can't do.
Posted Jul 31, 2017 by Karen 1160
To be happy, we focus on what we are thankful for - instead of the limitations due to the disease. Multiple family members have spent the majority of their lives in wheelchairs due to this disease. We have looked at the wheelchair as a tool that has allowed us to still 'live' our lives.
I write in a journal daily...focusing on the positives in our lives. I use positive music as a wonderful mood enhancer. I share in online communities, trying to help others who are dealing with this disease. All of these things allow me to focus on happiness, to focus on being thankful for every day we're alive and able to create new memories with our loved ones.
I write in a journal daily...focusing on the positives in our lives. I use positive music as a wonderful mood enhancer. I share in online communities, trying to help others who are dealing with this disease. All of these things allow me to focus on happiness, to focus on being thankful for every day we're alive and able to create new memories with our loved ones.
Posted Sep 9, 2017 by lorirdavis 1452
It is part of who I am. I have good days and bad. My faith in God and the love of my family keep me going
Posted Sep 28, 2017 by Mary 2550
As stated...live carefully but joyfully. Know physical limitations. Try to be my own medical advocate by researching every article I can find online about osteopetrosis so I can have an intelligent and knowledgeable conversation with medical professionals in order to be able to make informed decisions on surgeries and treatments.
Posted Dec 3, 2018 by karmavet 660
Translated from portuguese
Improve translation
Have a lot of patience to give all the support that they need and lots of Love
Posted Sep 15, 2017 by Paula 2500
