23

Celebrities with Parry-Romberg syndrome / Progressive hemifacial atrophy

What famous people have Parry-Romberg syndrome / Progressive hemifacial atrophy? Find out which celebrities, athletes or public figures have Parry-Romberg syndrome / Progressive hemifacial atrophy.

Celebrities with Parry-Romberg syndrome / Progressive hemifacial atrophy

Celebrities with Parry-Romberg Syndrome / Progressive Hemifacial Atrophy


Parry-Romberg Syndrome, also known as Progressive Hemifacial Atrophy, is a rare neurological disorder characterized by the gradual wasting away of the tissues on one side of the face. This condition typically begins in childhood or adolescence and progresses slowly over several years. While it is a relatively uncommon condition, there have been a few celebrities who have openly discussed their experiences with Parry-Romberg Syndrome.



1. Jono Lancaster


Jono Lancaster is a British activist and public speaker who has become well-known for his advocacy work for people with facial differences. He was born with Parry-Romberg Syndrome, which has caused significant facial asymmetry. Despite facing challenges and discrimination throughout his life, Jono has embraced his condition and uses his platform to raise awareness and promote inclusivity.



2. Renée Zellweger


Renée Zellweger, the acclaimed American actress, has also been rumored to have Parry-Romberg Syndrome. While she has not publicly confirmed this, there has been speculation about her facial changes over the years. It is important to note that without an official statement from Renée Zellweger herself, it is difficult to confirm the exact cause of any changes in her appearance.



3. Gemma Ridgway


Gemma Ridgway is a British woman who gained media attention for her journey with Parry-Romberg Syndrome. She has shared her experiences through various platforms, including social media and television interviews. Gemma has been an inspiration to many, raising awareness about the condition and promoting self-acceptance.



4. Stephanie Veloso


Stephanie Veloso is a Brazilian model and actress who has Parry-Romberg Syndrome. She has been vocal about her condition and has used her platform to challenge beauty standards and promote body positivity. Stephanie's courage and resilience have made her an influential figure in the Parry-Romberg Syndrome community.



5. Kayleigh Williamson


Kayleigh Williamson is a young woman from the United Kingdom who has Parry-Romberg Syndrome. She has shared her journey on social media, documenting her experiences and raising awareness about the condition. Kayleigh's openness and determination have made her an inspiration to others facing similar challenges.



It is important to recognize that Parry-Romberg Syndrome affects individuals differently, and the severity of the condition can vary. While these celebrities have openly discussed their experiences, it is crucial to respect their privacy and remember that they are more than just their condition.


Diseasemaps
1 answer

Celebrities with Parry-Romberg syndrome / Progressive hemifacial atrophy

Parry-Romberg syndrome / Progressive hemifacial atrophy life expectancy

What is the life expectancy of someone with Parry-Romberg syndrome / Progre...

4 answers
Is Parry-Romberg syndrome / Progressive hemifacial atrophy hereditary?

Is Parry-Romberg syndrome / Progressive hemifacial atrophy hereditary?

2 answers
Is Parry-Romberg syndrome / Progressive hemifacial atrophy contagious?

Is Parry-Romberg syndrome / Progressive hemifacial atrophy contagious?

2 answers
Natural treatment of Parry-Romberg syndrome / Progressive hemifacial atrophy

Is there any natural treatment for Parry-Romberg syndrome / Progressive hem...

1 answer
ICD9 and ICD10 codes of Parry-Romberg syndrome / Progressive hemifacial atrophy

ICD10 code of Parry-Romberg syndrome / Progressive hemifacial atrophy and I...

2 answers
Living with Parry-Romberg syndrome / Progressive hemifacial atrophy

Living with Parry-Romberg syndrome / Progressive hemifacial atrophy. How to...

4 answers
Parry-Romberg syndrome / Progressive hemifacial atrophy diet

Parry-Romberg syndrome / Progressive hemifacial atrophy diet. Is there a di...

3 answers
History of Parry-Romberg syndrome / Progressive hemifacial atrophy

What is the history of Parry-Romberg syndrome / Progressive hemifacial atro...

1 answer

World map of Parry-Romberg syndrome / Progressive hemifacial atrophy

Find people with Parry-Romberg syndrome / Progressive hemifacial atrophy through the map. Connect with them and share experiences. Join the Parry-Romberg syndrome / Progressive hemifacial atrophy community.

Stories of Parry-Romberg syndrome / Progressive hemifacial atrophy

PARRY-ROMBERG SYNDROME / PROGRESSIVE HEMIFACIAL ATROPHY STORIES
Parry-Romberg syndrome / Progressive hemifacial atrophy stories
My first symptoms showed up at about 4 or 5. Alopecia and skin discoloration. Slowly it progressed and at about 10 My parents began the search. I was officially diagnosed at 12 by doctors at UCLA. I was then sent to UCSF and went through several team...

Tell your story and help others

Tell my story

Parry-Romberg syndrome / Progressive hemifacial atrophy forum

PARRY-ROMBERG SYNDROME / PROGRESSIVE HEMIFACIAL ATROPHY FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map