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Is Parry-Romberg syndrome / Progressive hemifacial atrophy contagious?

Is Parry-Romberg syndrome / Progressive hemifacial atrophy transmitted from person to person? Is Parry-Romberg syndrome / Progressive hemifacial atrophy contagious? What are the routes of contagion? People with experience in Parry-Romberg syndrome / Progressive hemifacial atrophy help solve this question.

Is Parry-Romberg syndrome / Progressive hemifacial atrophy contagious?

Parry-Romberg syndrome, also known as Progressive hemifacial atrophy, is not contagious. It is a rare disorder characterized by progressive shrinkage and degeneration of the tissues on one side of the face. The exact cause is unknown, but it is believed to involve an autoimmune component. It typically begins in childhood or adolescence and progresses slowly over several years. Although the syndrome can cause significant cosmetic changes, it does not pose a risk of transmission to others.



Parry-Romberg syndrome, also known as Progressive hemifacial atrophy, is a rare disorder characterized by the progressive wasting away (atrophy) of the tissues on one side of the face. It typically begins in childhood or adolescence and progresses slowly over several years. The exact cause of this condition is unknown, but it is believed to involve an autoimmune or inflammatory process affecting the tissues of the face.



Now, to address the question at hand, Parry-Romberg syndrome is not contagious. It is not caused by an infection or a communicable agent that can be passed from person to person. Instead, it is considered an idiopathic condition, meaning its cause is unknown.



The atrophy in Parry-Romberg syndrome affects the skin, underlying fat, muscles, and sometimes even the bones of the face. As the condition progresses, it can lead to various symptoms such as facial asymmetry, loss of facial volume, sunken appearance of the eye socket, dental and jaw misalignment, and neurological manifestations like seizures or migraines in some cases.



While the exact triggers for Parry-Romberg syndrome are not fully understood, there are some theories that suggest it may be related to genetic factors, hormonal changes, or vascular abnormalities. However, more research is needed to establish a definitive cause.



Since Parry-Romberg syndrome is not contagious, individuals with the condition do not pose a risk of transmitting it to others through casual contact or close proximity. It is important to note that Parry-Romberg syndrome is a chronic condition that requires ongoing medical management and may have a significant impact on the affected individual's quality of life.



If you suspect you or someone you know may have Parry-Romberg syndrome, it is crucial to consult with a qualified healthcare professional for an accurate diagnosis and appropriate treatment options.


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My first symptoms showed up at about 4 or 5. Alopecia and skin discoloration. Slowly it progressed and at about 10 My parents began the search. I was officially diagnosed at 12 by doctors at UCLA. I was then sent to UCSF and went through several team...

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