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Phyllodes tumor prognosis

What is the prognosis if you have Phyllodes tumor? Quality of life, limitations and expectatios of someone with Phyllodes tumor.

Phyllodes tumor prognosis
4 answers
It can get better. If followed up and usually after 5 years phylloid free you can say you are over it. But even though the checks you have to be prepared for recurrences. It is a condition that you have to learn von accept. Bring alert is very important

Posted Nov 26, 2017 by Sabrina 2500
Many folk who have had a OT never have a recurrence.

Posted May 6, 2018 by Marie 2500
If treated and monitored the prognosis is very good.
Left untreated a malignant tumour is fatal.
It has a high rate of reoccurance within 2 years so close monitoring is needed .

Posted Aug 10, 2020 by Simone Lovett 2550
This depends on the pathology. If it is benign or borderline and you have surgery to remove it then the prognosis is excellent. If you have malignant phyllodes then prognosis depends on how big it is (over 5cm is higher risk), how high the mitotic rate is (over 10 is malignant, over 30 is higher risk), whether there is stromal overgrowth (higher risk) and necrosis (higher risk). If you don't have any high risk features then you probably have a 90% chance of surviving 10 years or more. If you have a lot of high risk features then it could be significantly lower than that. If it has spread the prognosis is very poor as there are no effective treatments.

Posted Sep 26, 2020 by Lucy 3570

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Stories of Phyllodes tumor

PHYLLODES TUMOR STORIES
Phyllodes tumor stories
In February 2015 I found a lump in my right breast. I was diagnozed with fibroadenoma, but it appeared to be a benign PT (2 cm., surgery in March). No margins taken although the initial path report stated BPT. Final path report confirmed no clear tis...
Phyllodes tumor stories
I had what was termed a harmless fibroadenoma removed in June of 2007. At the age of 33, I had my first baby and was nursing him. He was born in December. The following November, I noticed that my scar tissue felt different. I had an ultrasound and ...
Phyllodes tumor stories
I felt a rather large Lump in my Left Breast at the 2 O'Clock position. I was just due for my Mammogram and scheduled it. A subsequent needle biopsy showed MPT with Liposarcoma component. I am scheduled for a bilateral Mastectomy 8/18/15 with reconst...
Phyllodes tumor stories
After years of multiple lumpbectomies ,seeing a oncologist due to my sister having breast cancer ,my high risk and Years of mammograms, ultrasounds and breast MRIS. My Dr. Advised me to get a prophylactic mastectomy due to things still being found an...
Phyllodes tumor stories
My MPT started a year after constant stress and caring for a partner with cancer. I had no time for myself to keep my stress levels down and I believe this is the reason I became ill. Though doctors had some knowledge of the disease it was not I fel...

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