12

Is there any natural treatment for Pierre Robin Syndrome?

Are there natural treatment(s) that may improve the quality of life of people with Pierre Robin Syndrome? Here you can see if there is any natural remedy and/or treatment that can help people with Pierre Robin Syndrome

Natural treatment of Pierre Robin Syndrome

Natural Treatment for Pierre Robin Syndrome


Pierre Robin Syndrome (PRS) is a congenital condition characterized by a combination of three main features: a small lower jaw (micrognathia), a tongue that falls back in the throat (glossoptosis), and a cleft palate. While medical intervention is often necessary to manage the symptoms and complications associated with PRS, there are some natural treatments that can be used as complementary approaches to support overall health and well-being.



Dietary Modifications


Dietary modifications can play a significant role in managing the symptoms of PRS. Since infants with PRS may have difficulty feeding due to their small jaw and tongue position, it is important to ensure they receive adequate nutrition. Here are some dietary recommendations:



  • Breastfeeding: Breast milk is the ideal source of nutrition for infants with PRS. It provides essential nutrients and antibodies to support their immune system.

  • Bottle Feeding: If breastfeeding is not possible, using a specialized bottle with a smaller nipple or a nipple with a larger hole can help facilitate feeding for infants with PRS.

  • Positioning: Positioning the baby in an upright position during feeding can help prevent choking and aspiration.

  • Thickened Feeds: Thickening formula or breast milk with a thickening agent, as recommended by a healthcare professional, can help reduce the risk of aspiration.



Oral Exercises


Oral exercises can help improve tongue and jaw function in individuals with PRS. These exercises aim to strengthen the muscles involved in swallowing, speech, and overall oral function. Here are some examples:



  • Tongue Exercises: Gentle tongue exercises, such as moving the tongue from side to side or touching the roof of the mouth, can help improve tongue control and mobility.

  • Jaw Exercises: Simple jaw exercises, like opening and closing the mouth or moving the jaw from side to side, can help strengthen the jaw muscles.

  • Sucking Exercises: Using a pacifier or a specially designed oral device can help stimulate sucking reflexes and improve oral muscle coordination.



Positioning Techniques


Positioning techniques can be beneficial in managing breathing difficulties associated with PRS. These techniques aim to optimize the airway and ensure proper oxygenation. Here are some recommended positioning strategies:



  • Side-Lying Position: Placing the baby on their side while sleeping can help prevent the tongue from falling back and obstructing the airway.

  • Elevated Head Position: Raising the head of the bed or using a specially designed wedge pillow can help keep the airway open and improve breathing during sleep.



Speech and Language Therapy


Speech and language therapy can be beneficial for individuals with PRS to improve their speech and communication skills. A speech therapist can provide exercises and techniques to enhance articulation, swallowing, and overall oral motor function. They can also assist in developing alternative communication methods if necessary.



Emotional Support


Living with a congenital condition like PRS can be challenging, both physically and emotionally. Providing emotional support to individuals with PRS and their families is crucial. Connecting with support groups, counseling services, or online communities can help individuals cope with the emotional aspects of the condition and provide a platform for sharing experiences and advice.



While these natural treatments can be beneficial in managing the symptoms and improving the quality of life for individuals with PRS, it is important to consult with healthcare professionals for a comprehensive treatment plan. Medical interventions, such as surgical correction of the jaw or palate, may still be necessary depending on the severity of the condition.


Diseasemaps
2 answers
Nope, just surgery and a lot of hard work

Posted Sep 7, 2017 by Hailey 3200

Natural treatment of Pierre Robin Syndrome

Pierre Robin Syndrome life expectancy

What is the life expectancy of someone with Pierre Robin Syndrome?

4 answers
Celebrities with Pierre Robin Syndrome

Celebrities with Pierre Robin Syndrome

2 answers
Is Pierre Robin Syndrome hereditary?

Is Pierre Robin Syndrome hereditary?

4 answers
Is Pierre Robin Syndrome contagious?

Is Pierre Robin Syndrome contagious?

5 answers
ICD9 and ICD10 codes of Pierre Robin Syndrome

ICD10 code of Pierre Robin Syndrome and ICD9 code

2 answers
Living with Pierre Robin Syndrome

Living with Pierre Robin Syndrome. How to live with Pierre Robin Syndrome?

4 answers
Pierre Robin Syndrome diet

Pierre Robin Syndrome diet. Is there a diet which improves the quality of l...

3 answers
History of Pierre Robin Syndrome

What is the history of Pierre Robin Syndrome?

1 answer

World map of Pierre Robin Syndrome

Find people with Pierre Robin Syndrome through the map. Connect with them and share experiences. Join the Pierre Robin Syndrome community.

Stories of Pierre Robin Syndrome

PIERRE ROBIN SYNDROME STORIES
Pierre Robin Syndrome stories
I started this foundation to create awareness for the syndrome as my son was born with the condition in October 2008. The Story of Joshua Parkes and how this foundation came into being. Joshua was born on the 20th October 2008, the happiest day ev...
Pierre Robin Syndrome stories
HELLO EVERYONE MY SON WAS BORN THE 3/3/16. MY SON IS 6 MONTHS OLD ALMOST 7MONTHS OLD HE HAS MICROCEPHALY,  LARYNGOMALICA, DANCING EYES, VOCAL CORD PALSY, BRAIN ATROPHY, PRS (PIERRE ROBIN SEQUENCE) AND A HIGH PALATE, SLEEP APNEA, BREATHING PROBLEMS....
Pierre Robin Syndrome stories
My daughter was born with mild PRS and a cleft soft palate. 
Pierre Robin Syndrome stories
My son Bernard (little B) was born on Aug. 2 2014. We had no idea at time of birth that anything was wrong with him. I had a scheduled C-section for Aug. 24 but he decided to come early. As I was laying on the operating table I heard a faint whimper ...
Pierre Robin Syndrome stories
My daughter was born 1/12/2010 midwife led birthing center flat and unresponsive. She required cpr and quickly and immediate transfer to the neonatal intensive care unit. She was then diagnosed with Pierre robin yndrome, microcargnathia and horse sho...

Tell your story and help others

Tell my story

Pierre Robin Syndrome forum

PIERRE ROBIN SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map