Which are the symptoms of Porphyria?

Burning in the sun and getting swollen

The worst symptom is the pain. Abdominal pain and all over body pain.

The sensitivity and burning sensation one experience outside in the sun.
I would love to get rid of all the skin lesions

Symptoms are various. If you have AIP, than is commonly present acute abdominal pain, nausea and vomiting. Your skin and eyes could be yellow colored, and our urine reddish-brown like Porto vine.

Depends on the type and severity. For AIP, intense abdominal pain, neuropathy, constipation, depression, fatigue, and weakness are some common symptoms.

For me, the brain fog, confusion, random anxiety/depression, fatigue.

STOMACH PAIN, NAUSEA, FATIGUE, HIPONATREMIA,DIZZYNESS, ETC

Depending on the type of porphyria (I have one of the Acute Hepatic Porphyrias - Variegate Porphyria) there can be several. Some of the Porphyrias, like Variegate Porphyria or VP as its known can have both cutaneous (meaning it affects the skin) and neurological , some patients with VP may only have their skin affected and others may only have the neurological aspects.
I have both of these.
The limitations in terms of being able to go out in the sun are huge
The skin blisters easily, oftentimes the sun touching the skin can be quite painful resulting in a sharp, burning sensation. The skin is prone to hives, bacterial infections from the severe itching. The skin scars easily, leaving purple scars visible, its also very fragile, prone to bruising and tearing and often very slow to heal.
The other symptoms on a daily basis include fatigue, varying in degrees from mild to extreme, loss of balance, co-ordination, brain fog which can hinder the ability to get through our day to day life. Body aches and pains, neuropathy flares which can be mild to severe, can last a few days to weeks. Fluid retention and a feeling of heaviness in the limbs. A general feeling of being unwell. Headaches, eye sensitivity to sunlight / fluorescent lighting. Anxiety issues, paranoia, obsessive compulsive behaviour, flank pain , abdominal pain from mild to severe in intensity. Digestive issues, constipation, nausea, insomnia, restless leg syndrome, nerve damage to various organs, urinary issues, kidney and liver complications, stress is a huge trigger so learning to manage this is vital. Anaemia, hypertension, tachycardia.

These are just some of the symptoms and for the most part we are able to function and live a relatively normal life with certain limitations if the Porphyria is under control and managed well however there are times when something can trigger an attack due to a build up of accumulated porphyrins and then the impact can certainly be limiting.
People may often have to change careers or give up their jobs because of the type of work undertaken. They may be too ill to continue working.
The battle with fatigue is debilitating and often times its difficult to be sociable or partake in activities because of the sheer amount of effort involved.
The anxiety and brain fog are particularly limiting. To feel like you are constantly looking through the world in a haze, where you just want to shake your head in the hope that the haze will clear and you can think straight but you know nothing will clear that! Anxiety which springs from nowhere, it has no reason to be there and you dont know why you feel that way or what set it off but it can be debilitating.
Not knowing how you will react to a drug or if you need to be prescribed a drug weighing up the risks, do you take the medication knowing that it may well make you sick or what will happen if you dont take it? Not everyone with the acute Porphyrias will react in the same way to meds. We all react differently, so whilst a drug may be safe for one person with the same Porphyria as you have the next person will have an attack. We just never know.
If I could get rid of some of the symptoms, I would chose the brain fog. I have had that since early teens, its become the most limiting of all things for me personally. It has affected my belief in myself and can be soul destroying.
The anxiety and depression would be next on my list then I would chose the neuropathy and nerve pain.

The Pain from porphyria is excruciating. At first it seems like pain you might have had before, indigestion and joint pain. you think - his will go way soon enough. No Problem. However, the pain does not go away. It stays and the longer it stays with you the more debilitating it becomes until you are nothing but th epian. It will completely sweep you away and turn you into a zombie of horrid pain. The first time I felt it I was 18 years old. I stayed i bed in fetal position for a week until I started vomiting bile. That is when I was taken to the hospital.