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What are the best treatments for Porphyria?
See the best treatments for Porphyria here
D10 has helped me get rid of the worst of my symptoms. (Four days of IV D10 over three hours each day)
Posted Feb 27, 2017 by Cassandra 1000
I experience pain relief when the Dr puts me on glucose intravenous. Pethidine also helps for pain
Posted Jan 12, 2018 by Mari Blignault 1500
The best treatment if you are far from hospital is sugar intake- glucose ,dextrose and vitamins b12 and folic acid
Posted Jul 14, 2018 by Nadezda 750
Carbs, dextrose saline, panhematin
Posted Mar 30, 2019 by Jocelyn 800
HEM ARGINATE, NORMOSANG, PANHEMATINE
Posted Mar 30, 2019 by Marie 2500
Dextrose IV fluid is first line attack on symptoms while maintaining pain and nausea. Hematin IV is also used to treat attacks.
Posted Mar 30, 2019 by Tracey 100
Avoiding the triggers, however its not always possible to know what the triggers are and on occasion there are no known triggers.
Glucose is the first course of action, always have some in powder form on hand when you feel an attack coming on.
Carbohydrates - are vital in starving off an attack, eat regular, smaller meals but always ensure you eat.
Glucose / dextrose / drip which the hospital will administer.
Paracetamol or Mypradol tablets can help with milder form of pain in more severe situations a doctor may need to use opioids.
I am not able to tolerate morphine so I need to look at alternative pain medication,
Heme is often administered at the start of an attack now by hospital staff.
Glucose is the first course of action, always have some in powder form on hand when you feel an attack coming on.
Carbohydrates - are vital in starving off an attack, eat regular, smaller meals but always ensure you eat.
Glucose / dextrose / drip which the hospital will administer.
Paracetamol or Mypradol tablets can help with milder form of pain in more severe situations a doctor may need to use opioids.
I am not able to tolerate morphine so I need to look at alternative pain medication,
Heme is often administered at the start of an attack now by hospital staff.
Posted May 29, 2021 by Carollynn 5770
There are differing answers for this question and it can take years for someone to understand their body and the disease enough to be able to tell. If it is in the beginning and the symptoms are small, you can drink sugar water at home and I mean drink a ton of sugar water. If the disease ramps up and you start vomiting then you have to go to the hospital and get of pain med and an IV to get Glucose D10. If that doesn't work you have to get this blood substance called Hematin. It is basically the hemoglobin from blood through a pick line.
Posted Jan 12, 2023 by Tracey 600
