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Which advice would you give to someone who has just been diagnosed with Retinitis pigmentosa?
See some advice from people with experience in Retinitis pigmentosa to people who have just been diagnosed with Retinitis pigmentosa
Do not lose hope.
RP is not the end of the world.
Spend time to learn skills you would need in the future when your sight will be heavily impaired.
Learn Breill'e while you can still see.
Learn job you could do without seeing.
RP is not the end of the world.
Spend time to learn skills you would need in the future when your sight will be heavily impaired.
Learn Breill'e while you can still see.
Learn job you could do without seeing.
Posted Jul 24, 2017 by Filip 2150
Breathe, relax, join a support group in real life or a Facebook group, it helps to know other people are going through the same things as you
Posted Jul 25, 2017 by Alan 400
I would have to say research RP but DON'T get upset then wtite down questions you might have and join a RP group online and ask your questions we wolud love to help.
Posted Sep 14, 2017 by Tom 1200
Well when I was diagnosed it was interesting, I was treated like an experiment, then told I was a child lying for attention, in those days it was a diagnosis for unknown answers. However, today there are so many tests they can do, genetic testing, eye testing, nuerogical testing and so on, it is now a know diagnostic rather than unknown diagnostic.
Posted Sep 30, 2017 by Bev 400
see as much as you can while you still can to make as many memories as possible. don't give up, there are a lot of new treatments coming out.
Posted Jan 13, 2018 by Anders 2500
Translated from spanish
Improve translation
That life is short and there is much to do. Do not surrender and give the best of yourself
Posted Jun 4, 2017 by jacqueline 950
