Living with Retinitis pigmentosa. How to live with Retinitis pigmentosa?
Can you be happy living with Retinitis pigmentosa? What do you have to do to be happy with Retinitis pigmentosa? Living with Retinitis pigmentosa can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Retinitis pigmentosa
You accept the fact that the way you live life before the disease is a new version of daily life. I believe in everyone there is the potential for happiness and every one is different. Yes, happiness is possible with RP. The positive and the best way to learn how to become more positive in general is the best advice I can offer
The biggest thing is get orientation and mobility early on with the diagnosis. Know how to use a white cane . Families often feel sad for a person losing or lot their vission. Do a vision bucket list like things visually to see before the vision progresses
I believe you can be happy with RP I think its how you look at things. You can wake up upset your losing your vision. Or you can wake up and say I can see my loved ones if you can and a great support group works well.
It's pretty simple.
Started when I was 22 or so. My mom has RP and my sister has vision trouble as well. I knew I had RP rather soon after but spent years fighting the changes I needed to make to my lifestyle. Hell, I still do. RP folks tend to be...
I'm not going to write personal information here. But I do encourage you to contact me if you have RP or Coats Disease. I have never met or known anybody else who has Coats, so that would be particularly interesting. We might be able to share informa...
I was diagnosed with autosomal dominant Retinitis Pigmentosa when I was 14. I inherited it from my dad. I was declared legally blind (less than 20 degrees of vision) when I was 20. I am currently 28, and I have 5 degrees left. I also have cystoid mac...
AUTOSOMAL RECESSIVE RP - GENE PDE6B PATHOGENIC MUTATION HETEROZYGOUS (C.892C>T (P.GIN298*))
I was diagnosed with RP in 2012, aged 32, after my boyfriend at the time insisted I go and get my eyes checked. He once brought me a glass of water during ...
Another question... Do you still have a job? Or is it too difficult to work with your RP? I do have a job, but it is not so easy and it is very exhausting for my eyes...
I love to travel! I have a vision of only 3°, but I really want to see the world! The noises, the smell, the kind people, to be on the road, I love it! Where have you guys been to and what are your favorite destinations?