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Living with Retinitis pigmentosa. How to live with Retinitis pigmentosa?

Can you be happy living with Retinitis pigmentosa? What do you have to do to be happy with Retinitis pigmentosa? Living with Retinitis pigmentosa can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Retinitis pigmentosa

Living with Retinitis pigmentosa
9 answers
You accept the fact that the way you live life before the disease is a new version of daily life. I believe in everyone there is the potential for happiness and every one is different. Yes, happiness is possible with RP. The positive and the best way to learn how to become more positive in general is the best advice I can offer

Posted Apr 19, 2017 by Tiffany B Nabors 760
Live your life. Learn new skills. Love, feel, live.

Posted Jul 24, 2017 by Filip 2150
Im happy, i don't know how i will be when it gets bad

Posted Jul 25, 2017 by Alan 400
The biggest thing is get orientation and mobility early on with the diagnosis. Know how to use a white cane . Families often feel sad for a person losing or lot their vission. Do a vision bucket list like things visually to see before the vision progresses

Posted Sep 8, 2017 by Macayla 1900
I believe you can be happy with RP I think its how you look at things. You can wake up upset your losing your vision. Or you can wake up and say I can see my loved ones if you can and a great support group works well.

Posted Sep 14, 2017 by Tom 1200
There are lots off challenges that we have to face but that's life, we have always tried to be Happy :)

Posted Sep 16, 2017 by kiran 700
don't focus on what you can't do, focus on what you can do. try to move somewhere where you can get around without assistance.

Posted Jan 13, 2018 by Anders 2500
Translated from spanish Improve translation
If you can be happy. Accepting the illness and its limitations with the passage of time is manifested, and by adapting your world and yourself to live

Posted Jun 4, 2017 by jacqueline 950
Translated from spanish Improve translation
... If One accepts his disability and does not cease to beat... Comes out ahead

Posted Sep 13, 2017 by Juan 700

Living with Retinitis pigmentosa

Retinitis pigmentosa life expectancy

What is the life expectancy of someone with Retinitis pigmentosa?

7 answers
Celebrities with Retinitis pigmentosa

Celebrities with Retinitis pigmentosa

2 answers
Is Retinitis pigmentosa hereditary?

Is Retinitis pigmentosa hereditary?

8 answers
Is Retinitis pigmentosa contagious?

Is Retinitis pigmentosa contagious?

6 answers
ICD9 and ICD10 codes of Retinitis pigmentosa

ICD10 code of Retinitis pigmentosa and ICD9 code

5 answers
Natural treatment of Retinitis pigmentosa

Is there any natural treatment for Retinitis pigmentosa?

3 answers
Retinitis pigmentosa diet

Retinitis pigmentosa diet. Is there a diet which improves the quality of li...

9 answers
History of Retinitis pigmentosa

What is the history of Retinitis pigmentosa?

3 answers

World map of Retinitis pigmentosa

Find people with Retinitis pigmentosa through the map. Connect with them and share experiences. Join the Retinitis pigmentosa community.

Stories of Retinitis pigmentosa

RETINITIS PIGMENTOSA STORIES
Retinitis pigmentosa stories
It's pretty simple.  Started when I was 22 or so. My mom has RP and my sister has vision trouble as well. I knew I had RP rather soon after but spent years fighting the changes I needed to make to my lifestyle. Hell, I still do. RP folks tend to be...
Retinitis pigmentosa stories
I'm not going to write personal information here. But I do encourage you to contact me if you have RP or Coats Disease. I have never met or known anybody else who has Coats, so that would be particularly interesting. We might be able to share informa...
Retinitis pigmentosa stories
I was diagnosed with autosomal dominant Retinitis Pigmentosa when I was 14. I inherited it from my dad. I was declared legally blind (less than 20 degrees of vision) when I was 20. I am currently 28, and I have 5 degrees left. I also have cystoid mac...
Retinitis pigmentosa stories
AUTOSOMAL RECESSIVE RP - GENE PDE6B PATHOGENIC MUTATION HETEROZYGOUS (C.892C>T (P.GIN298*)) I was diagnosed with RP in 2012, aged 32, after my boyfriend at the time insisted I go and get my eyes checked. He once brought me a glass of water during ...
Retinitis pigmentosa stories
Father of a beautiful girl, 7 years of age with RP

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Retinitis pigmentosa forum

RETINITIS PIGMENTOSA FORUM
Retinitis pigmentosa forum
how can you live with this disese?
Retinitis pigmentosa forum
Another question... Do you still have a job? Or is it too difficult to work with your RP? I do have a job, but it is not so easy and it is very exhausting for my eyes...
Retinitis pigmentosa forum
I love to travel! I have a vision of only 3°, but I really want to see the world! The noises, the smell, the kind people, to be on the road, I love it! Where have you guys been to and what are your favorite destinations?

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