3

Can people with Rett Syndrome work? What kind of work can they perform?

See how people with experience in Rett Syndrome give their opinion about whether people with Rett Syndrome can work and what kind of jobs are more appropriated for people with Rett Syndrome

Rett Syndrome jobs
3 answers
Sure, they could be a greeter or, with assistance, do simple work

Posted Sep 11, 2017 by Maria 2000
Most people with Rett syndrome can't care for themselves and need someone to assist them. That being sad, people with Rett Syndrome are teachers! They teach the world about Rett Syndrome. They teach the world about love, compassion and perseverance!!

Posted Nov 8, 2017 by Madelyne 500
I have an 18-year-old student with Rett syndrome who is pretty experienced using her Tobii device to communicate. I have been tasked by the school department to come up with a plan to train her for employment for the upcoming year and until she reaches
the age of 22. We have identified the job of teaching others about Rett syndrome. Watching her use the Tobii device is eye opening for those who have not experienced what these people can really do and how much they know what is going on about them. She attends meetings about the syndrome with other students who watch her, and people come to the house to watch while I work with her. Other than being a greeter, which would probably bore her much too quickly, we are trying to find meaningful employment using the partner assisted employment that the State of Florida has, which would involve the demonstration of the device. Always looking for other ideas as well.

Posted Jan 19, 2020 by Marcia Lome 100

Rett Syndrome jobs

Rett Syndrome life expectancy

What is the life expectancy of someone with Rett Syndrome?

4 answers
Celebrities with Rett Syndrome

Celebrities with Rett Syndrome

1 answer
Is Rett Syndrome hereditary?

Is Rett Syndrome hereditary?

4 answers
Is Rett Syndrome contagious?

Is Rett Syndrome contagious?

4 answers
ICD9 and ICD10 codes of Rett Syndrome

ICD10 code of Rett Syndrome and ICD9 code

4 answers
Natural treatment of Rett Syndrome

Is there any natural treatment for Rett Syndrome?

2 answers
Living with Rett Syndrome

Living with Rett Syndrome. How to live with Rett Syndrome?

2 answers
Rett Syndrome diet

Rett Syndrome diet. Is there a diet which improves the quality of life of p...

2 answers

World map of Rett Syndrome

Find people with Rett Syndrome through the map. Connect with them and share experiences. Join the Rett Syndrome community.

Stories of Rett Syndrome

RETT SYNDROME STORIES
Rett Syndrome stories
Taylor was diagnosed with Rett Syndrome at 2 1/2 yrs old.  She is atypical,  and still walking.  We have had many ups and down throughout the years, but I wouldn't trade it for anything. We have learned a lot about life, love and patience and met...
Rett Syndrome stories
" Je m’appelle Romane, j’ai bientôt 9 ans. J’ai un grand frère, Léo, de 14 ans et une petite sœur, Anna, de 4 ans. Quand je suis née (le 17 novembre 2006), maman s’est rapidement inquiétée de petits soubresauts que j’avais régulièr...
Rett Syndrome stories
Irene was born perfect: she ate and slept well, was happy, laughed, spoke, walked. At about 18-20 months she started to spit out, repeat words, throw things away, scream. Doctors, neurologist, genetics, psyquiatrists, psycologists... I don't remember...
Rett Syndrome stories
Www.gp2c.org/skylarb 
Rett Syndrome stories
Ema was born in December 2008 in Winnipeg Manitoba Canada. She is the youngest of 5 children. She has a micro-deletion on the 22.33 gene and has been diagnosed with having atypical Rett Syndrome with a unique MECP2 gene deletion. What we didn’t kno...

Tell your story and help others

Tell my story

Rett Syndrome forum

RETT SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map