Story about Sarcoidosis .

Sarcoidosis destroyed my life

Jan 15, 2016


When I turned 30, I got very sick. I could not work. I went from 160lbs., to 110lbs. I started going to doctors 2-3 times per week, every week. Yet no one could find the problem. I kept offering out my family history, but that was always dismissed. After about 1.5 years of this, I complained of a pain just below my rib cage. I was told it was liver and spleen. I was immediately sent to a specialist. He studied my history for quite a while, and after two visits, learned it was sarcoidosis. 

Sadly, over the years it has caused extensive damage to my body, including: liver, spleen, lungs, heart, kidneys, skin, bones, joints, tendons, brain, eyes, etc. Those I what I recall at the moment. They are in no particular order. 

This has NOT been a fun road to travel. I hope they can find a cure that can help all afflicted. 

Know someone who should read this story? Share it

1 comment
0

Have you tried Remicade? It works well for mostly all sarcoidosis except the brain and nervous system.

Commented 9 years ago Angel 58

Login or register to leave a comment


Is Sarcoidosis contagious?

Is Sarcoidosis contagious?

History of Sarcoidosis

What is the history of Sarcoidosis?

Sarcoidosis prognosis

Sarcoidosis prognosis

Couple and Sarcoidosis

Is it easy to find a partner and/or maintain relationship when you hav...

Latest progress of Sarcoidosis

What are the latest advances in Sarcoidosis?

Sarcoidosis treatments

What are the best treatments for Sarcoidosis?

Celebrities with Sarcoidosis

Celebrities with Sarcoidosis

Living with Sarcoidosis

Living with Sarcoidosis. How to live with Sarcoidosis?