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Stevens Johnson Syndrome prognosis

What is the prognosis if you have Stevens Johnson Syndrome? Quality of life, limitations and expectatios of someone with Stevens Johnson Syndrome.

Stevens Johnson Syndrome prognosis

Stevens Johnson Syndrome Prognosis


Stevens Johnson Syndrome (SJS) is a rare but severe disorder that affects the skin and mucous membranes. It is often triggered by an adverse reaction to certain medications or infections. The prognosis of SJS can vary depending on several factors, including the underlying cause, the extent of skin involvement, and the promptness of medical intervention.



Early recognition and immediate medical attention are crucial in improving the prognosis of SJS. If diagnosed and treated promptly, the chances of recovery are generally higher. The first step in managing SJS is to identify and discontinue the causative medication or treat the underlying infection.



The severity of skin involvement is a significant factor in determining the prognosis. SJS is characterized by the detachment of the top layer of the skin, leading to painful blisters, open sores, and widespread skin peeling. In more severe cases, the condition can progress to a more extensive form called Toxic Epidermal Necrolysis (TEN). The larger the affected area, the higher the risk of complications and mortality.



Complications associated with SJS can be life-threatening and may include infections, sepsis, respiratory distress, and organ damage. These complications can significantly impact the prognosis and require intensive medical care.



Age and overall health of the individual also play a role in the prognosis. Younger individuals and those without pre-existing medical conditions tend to have a better chance of recovery.



Long-term effects of SJS can vary. Some individuals may experience scarring, changes in skin pigmentation, or eye problems such as dryness, sensitivity to light, or vision loss. Regular follow-up with healthcare professionals is essential to monitor and manage any ongoing issues.



Overall, the prognosis of Stevens Johnson Syndrome depends on various factors, including early recognition, prompt medical intervention, extent of skin involvement, presence of complications, age, and overall health. It is important for individuals affected by SJS to seek immediate medical attention and follow the recommended treatment plan to improve their chances of recovery and minimize long-term effects.


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Stories of Stevens Johnson Syndrome

STEVENS JOHNSON SYNDROME STORIES
Stevens Johnson Syndrome stories
I got SJS/TENS from taking lamictal. I was in the ICU burn unit at Grady hospital in Atlanta for 7 weeks. 5 of those I was in a medically induced coma. I lost 90% of my skin, all my hair and fingernails. My skin has come back mostly without scars. Ho...
Stevens Johnson Syndrome stories
I had gone to one hospital with a severe rash, I met a physician who know exactly what this was. I was transfered to the Burn Unit, where I received an active coat treatment and my body wrapped in guaze. With IV medication and constant lotion applied...
Stevens Johnson Syndrome stories
I WAS IN A CONSTRUCTION ACCIDENT AND BLEW MY KNEES OUT WHERE THEY WERE BONE ON BONE I RECEIVED 3 INJECTIONS OF EUEFLEUX SHOTS AND AFTER THE SECOND SHOT I BROKE OUT WITH BLISTERS AND HIVES NOBODY KNEW WHAT THEY WERE I WAS TREATED FOR THREE AND A HALF ...
Stevens Johnson Syndrome stories
Callum had SJS twice in 2013 at the age of 7. We still have no definite trigger 
Stevens Johnson Syndrome stories
My granddaughter had TEN a year ago. She had a rash that was diagnosed as Scarlett fever. After 24hours she wasd admitted to our local emergency ward. She was diagnosed with SJS within a few hours and transferred to Evelina London. The care she had t...

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