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What are the latest advances in Usher Syndrome?

Here you can see the latest advances and discoveries made regarding Usher Syndrome.

Latest progress of Usher Syndrome
2 answers
clinical trial for USH1b (UshStat gene therapy) Phase I/IIa
orphan drug designation for USH2A Exon13 and 40, clinical trial USH2a Exon 13 to come
several natural history studies for all subtypes
updated July 2018
Posted Jul 3, 2018 by Usher Initiative Austria
Cochleaire implantaten wanneer het restgehoor sterk vermindert
Momenteel spreken ze over een genetische pleister boor USH2A echter daar zijn ook nog diverse subgroepen in obv locaties binnen het gen zelf.
Er starten nieuwe experimentele onderzoeken ook voor ush2c
Posted Jun 17, 2021 by Deborah 2500

Latest progress of Usher Syndrome

Usher Syndrome life expectancy

What is the life expectancy of someone with Usher Syndrome?

5 answers
Celebrities with Usher Syndrome

Celebrities with Usher Syndrome

3 answers
Is Usher Syndrome hereditary?

Is Usher Syndrome hereditary?

4 answers
Is Usher Syndrome contagious?

Is Usher Syndrome contagious?

4 answers
ICD9 and ICD10 codes of Usher Syndrome

ICD10 code of Usher Syndrome and ICD9 code

4 answers
Natural treatment of Usher Syndrome

Is there any natural treatment for Usher Syndrome?

3 answers
Living with Usher Syndrome

Living with Usher Syndrome. How to live with Usher Syndrome?

4 answers
Usher Syndrome diet

Usher Syndrome diet. Is there a diet which improves the quality of life of ...

4 answers

World map of Usher Syndrome

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Stories of Usher Syndrome

USHER SYNDROME STORIES
Usher Syndrome stories
MY 100 RUN MEDALS CHALLENGE
DEAFBLIND RUNNER’S 100 RUN MEDALS CHALLENGE FACEBOOK PAGE   HELLO, I WOULD LIKE TO SHOW YOU MY FACEBOOK PAGE, DEAFBLIND RUNNER’S 100 RUN MEDALS CHALLENGE.   IT’S ABOUT DEAF & PARTIALLY SIGHTED (USHER SYNDROME) RUNNER, JAMES CLARKE, AGED 3...
Usher Syndrome stories
CARRIE ANN'S STORY
When I was twenty-one years old, I was diagnosed with Usher Syndrome Type II (part of the Retinitis Pigmentosa family). As a young adult, I had two passions: writing (both as a fiction writer and as a journalist) and sports. Once I received the diag...
Usher Syndrome stories
TINNE'S STORY
MEER WETEN? KLIK OP DE LINKS HIERONDER WANT TO KNOW MORE? CLICK THE LINKS BELOW (IT'S IN DUTCH, BUT YOU CAN USE GOOGLE TRANSLATE IF YOU WANT) http://www.webmus.be : mijn website /my website (Dutch) http://www.ushersyndroom.be : informatie over U...
Usher Syndrome stories
A POSITIVE STORY
When I was first diagnosed with Usher type II it hit me hard. I was 18, working as a plumber and training to do gas work. I had grand plans to start up my own business and advertise to single mums and pensioners who did not want a man in the house. I...
Usher Syndrome stories
DIAGNOSED AGE 23
i am Usher 2A.

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Usher Syndrome forum

USHER SYNDROME FORUM

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Symptoms soulmates

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