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Usher Syndrome prognosis
What is the prognosis if you have Usher Syndrome? Quality of life, limitations and expectatios of someone with Usher Syndrome.
it is a progressive condition leading to legal deaf blindness in adults
many individuals with Usher Syndrome lead happy and fulfilling lives with family, friends, children, job (even if they have to give up their job in late stage disease)
most of them make use of visual residues (tunnel vision) in their 50s, 60s or 70s, depending on subtype
many individuals with Usher Syndrome lead happy and fulfilling lives with family, friends, children, job (even if they have to give up their job in late stage disease)
most of them make use of visual residues (tunnel vision) in their 50s, 60s or 70s, depending on subtype
Posted Jul 3, 2018 by Usher Initiative Austria
Het is een progressieve aandoening, echter is het niet te voorspellen wanneer en hoe hard je gehoor of zicht achteruitgaat.
Posted Jun 17, 2021 by Deborah 2500
