congenital deafness (USH1) or mild or moderate hearing loss (USH2 and 3) combined with progressive vision loss due to RP (Retinopathia pigmentosa) leading to deafblindness in adults; balance disorders in Suptypes 1
The degeneration of my eyesight affects my night and peripheral vision making it impossible to go out alone. Winter is the worst time of year for me. I would do anything to be able to see the stars again and stop the eroding sight.
DEAFBLIND RUNNER’S 100 RUN MEDALS CHALLENGE FACEBOOK PAGE
HELLO, I WOULD LIKE TO SHOW YOU MY FACEBOOK PAGE, DEAFBLIND RUNNER’S 100 RUN MEDALS CHALLENGE.
IT’S ABOUT DEAF & PARTIALLY SIGHTED (USHER SYNDROME) RUNNER, JAMES CLARKE, AGED 3...
When I was twenty-one years old, I was diagnosed with Usher Syndrome Type II (part of the Retinitis Pigmentosa family).
As a young adult, I had two passions: writing (both as a fiction writer and as a journalist) and sports. Once I received the diag...
MEER WETEN? KLIK OP DE LINKS HIERONDER
WANT TO KNOW MORE? CLICK THE LINKS BELOW (IT'S IN DUTCH, BUT YOU CAN USE GOOGLE TRANSLATE IF YOU WANT)
http://www.webmus.be : mijn website /my website (Dutch)
http://www.ushersyndroom.be : informatie over U...
When I was first diagnosed with Usher type II it hit me hard. I was 18, working as a plumber and training to do gas work. I had grand plans to start up my own business and advertise to single mums and pensioners who did not want a man in the house. I...