2

What are the best treatments for Usher Syndrome?

See the best treatments for Usher Syndrome here

Usher Syndrome treatments
4 answers
hearing aids or cochlear implants for hearing loss enable audio verbal hearing and speech development;
therapy options for vision loss due to RP in or close to clinical trials (gen therapy, cell therapy - stem cell based, retina implant technology, pharmacological approach); regular eye assessment - management of side effects important (macula edema, blurry lens)

Posted Jul 3, 2018 by Usher Initiative Austria
There are no active treatments to solve this Syndrome. I would advice some training/coaching.

Posted May 8, 2017 by Rudo 1050
There is no cure or treatment.

Posted Oct 1, 2017 by Sophie 300
Geen behandeling
Momenteel veel in beweging bij experimenteel genetisch oogonderzoek om de retinitis pigmentosa tegen te gaan/ stabiliseren

Posted Jun 17, 2021 by Deborah 2500

Usher Syndrome treatments

Usher Syndrome life expectancy

What is the life expectancy of someone with Usher Syndrome?

5 answers
Celebrities with Usher Syndrome

Celebrities with Usher Syndrome

3 answers
Is Usher Syndrome hereditary?

Is Usher Syndrome hereditary?

4 answers
Is Usher Syndrome contagious?

Is Usher Syndrome contagious?

4 answers
ICD9 and ICD10 codes of Usher Syndrome

ICD10 code of Usher Syndrome and ICD9 code

4 answers
Natural treatment of Usher Syndrome

Is there any natural treatment for Usher Syndrome?

3 answers
Living with Usher Syndrome

Living with Usher Syndrome. How to live with Usher Syndrome?

4 answers
Usher Syndrome diet

Usher Syndrome diet. Is there a diet which improves the quality of life of ...

4 answers

World map of Usher Syndrome

Find people with Usher Syndrome through the map. Connect with them and share experiences. Join the Usher Syndrome community.

Stories of Usher Syndrome

USHER SYNDROME STORIES
Usher Syndrome stories
DEAFBLIND RUNNER’S 100 RUN MEDALS CHALLENGE FACEBOOK PAGE   HELLO, I WOULD LIKE TO SHOW YOU MY FACEBOOK PAGE, DEAFBLIND RUNNER’S 100 RUN MEDALS CHALLENGE.   IT’S ABOUT DEAF & PARTIALLY SIGHTED (USHER SYNDROME) RUNNER, JAMES CLARKE, AGED 3...
Usher Syndrome stories
When I was twenty-one years old, I was diagnosed with Usher Syndrome Type II (part of the Retinitis Pigmentosa family). As a young adult, I had two passions: writing (both as a fiction writer and as a journalist) and sports. Once I received the diag...
Usher Syndrome stories
MEER WETEN? KLIK OP DE LINKS HIERONDER WANT TO KNOW MORE? CLICK THE LINKS BELOW (IT'S IN DUTCH, BUT YOU CAN USE GOOGLE TRANSLATE IF YOU WANT) http://www.webmus.be : mijn website /my website (Dutch) http://www.ushersyndroom.be : informatie over U...
Usher Syndrome stories
When I was first diagnosed with Usher type II it hit me hard. I was 18, working as a plumber and training to do gas work. I had grand plans to start up my own business and advertise to single mums and pensioners who did not want a man in the house. I...
Usher Syndrome stories
i am Usher 2A.

Tell your story and help others

Tell my story

Usher Syndrome forum

USHER SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map