Apparently not glu ear!

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I always knew there was something more to my 6yo son. On his tenth grommets op in 5 years, with foul discharge for the whole time, the Specialist sat me down to tell me they'd found a Cholesteatoma, he'd need a scan to see the extent of it, that it could be fatal if untreated... then went off to do another surgery. I had no idea what I'd just been told or what was ahead of us, and 6 weeks later I've fought for the scan amongst other things. I've found out all my research, carefully googling and joining an excellent support group on Facebook which continues to teach me so much. You don't know what you don't know, and here in Auckland nobody seems to know about this disease. But I'm going to be informed and fight for my son. We're only just starting but now that I know what the disease is it feels like the last five years suddenly make sense. Watch this space!