- Chronic Fatigue Syndrome / M.E.
- Interviews
Arlette's interview
How did all start?
My appendix ruptured when I was 12. I never fully recovered after that. But I would still consider myself healthy back then. Years later I slowly got worse and worse.
Do you already have a diagnosis? How long did it take you to get it?
I got my diagnosis in 2009/2010. Almost 5 years after onset.
I got POTS diagnosis in 2016, and I do think it started that year (or became much worse).
For what medical specialties have you been treated? What has been the most useful specialty for your?
An ME specialist has been the post helpful. And my internal medicin doctor who diagnosed me with POTS.
What has been the most useful thing for you so far?
Carnitin and ubiquinol have been amazing for ME.
For POTS I rely on propranolol, fludrocortisone and increased salt and water.
What have been your biggest difficulties?
PEM and disbelieve
What things have you stopped doing?
Everything.
What do you think about the future?
I am hopeful
So far, which years have been the best years in your life? What have you done during them?
The year I met my boyfriend <3
What would you like to do if you didn’t have your condition?
I would be a scientist, doing science. And I would live on a farm with horses and lots of cats and dogs.
If you had to describe your life in a sentence, what would it be?
Hard, but worth it.
Finally, what advice would you give to a person in a similar situation?
FInd your community. We have so much wisdom and love to share, you are not alone.
