JOIN M.E. in #SillySheets to raise awareness & funds for Open Medicine Foundation researching M.E.
After 4 years fighting to get a diagnosis, treatment, educate doctors, and SSDI, I am bedridden, and housebound by ME/CFS. However, I did live a full life before, and my heart goes out to those patients like young Whitney Dafoe (his famous father Prof. Ron Davis started Open Medicine Foundation to find a cure): in solidarity with Whitney, a very private person who is 100% bedridden, in the prime of his life, with one of the severest cases of ME/CFS, I started #SillySheets to raise funds for www.omf.ngo research. Pose (extra silly) in bed, and post your selfie to social media OR donate to www.omf.ngo in 24 hours. Then nominate 3 people to do the same! #SillySheets #EndMECFS. Thank you from SPORTS STAR Shar
Sharleen's detailed history with ME/CFS 2014-2017: "After 1.5 years of going to endless doctors & specialists, a rheumatologist diagnosed me with Fibromyalgia in 2015, but I was not responding to the prescription medications. My GP had done the the immune panel of blood tests, but not EBV. My results were all negative except for off the charts reactivated Epstein Barr Virus. Since doctors are NOT taught about using anti-virals to treat viruses, by the time I had done the research AND fought for long term, high dose anti-virals (Valtrex), EBV was entrenched and so was ME/CFS. It took only 4 years from initial, extraordinary fatigue after any exertion/exercise (a common early symptom) to being completely housebound & bedridden. I am still fighting for SSDI and living off shrinking retirement funds. #SillySheets is a fundraiser I organized from bed on Vashon Island with an east coast friend (he has been fighting ME/CFS for 12 years) to benefit www.omf.ngo research. US government funding is essentially $5 per patient for a disease that looks like it is a global epidemic & is like end stage AIDS or cancer in patients."
