Story about Cleidocranial Dysplasia .

Being born with Cleidocranial Dyplasia

May 16, 2017

By: Zoe


I was diagnosed before I was born. My mother and my grandmother both have Cleidocranial Dyplasia. I have only met one other person outside of my family that had Cleidocranial dysphasia. I am 22 years old and haven't had a single needed surgery because I cannot afford it, even though my teeth and health are getting worse and wise day by day. Though I suffer with a lot of pain and ununderstanding people, I always make it though my days  There's not been a day I can think of that I don't have pain. I have worn a top partial plate since I was 13 (the same one I wear today). I wish I could afford a nee one, or just have a smile that is mine. One day. This condition has made me who I am and I wouldn't want to be anybody other than myself!!! I am learning more and more about my condition every day. My mind was blown when about a month or two ago a foundation was started "CCDsmiles". I never thought that my condition would ever get recognition, now that it has I have hope for everyone like me to get the medical attention needed.

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