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Is it easy to find a partner and/or maintain relationship when you have Erythromelalgia?
People with experience in Erythromelalgia give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Erythromelalgia. What are the possible difficulties in having a relationship?
Dating does become a lot harder because there is a lot of things you have to avoid doing and finding someone who is okay with that and okay with being cold all the time is very difficult. I was very fortunate to find an amazing woman who I have been dating for 2 years and she has been very supportive. Now there have been times where I can say that I have had to cancel dinner or cancel an activity due to having severe symptoms of this disease
Posted Sep 16, 2017 by Jeff 3050
I would not reveal too soon if you are dating. Make sure you trust the person and feel they can accept the challenges of living with someone with a pain disorder and the limitations of Erythromelalgia. A long term partner needs to kind and loving, and to take care of their own needs. A support group for the caregiver would be best.
Posted Dec 27, 2017 by mleaver 2500
I think a true partner should very understanding of the disease and take care of the individual
Posted Apr 4, 2018 by Alys 2500
It is not easy. I am currently single. When I date, they don’t really understand the sleepless nights and pain. They think just take a few acetaminophen and go to bed. You have to not always talk about the pain. It makes those around you feel terrible that there is nothing they can do to fix it. I quietly go to another room and read, watch tv/videos until I can sleep. They need to understand you are not leaving the bed because of them. Maybe counseling can help.
Posted Jan 18, 2021 by Kathy Vanicek 2500
No it isn’t easy. Because I can’t do much. And everyone else wants to do things.
Posted Aug 14, 2021 by saguaros 3000
