Since my diagnosis, the tumors were in in occipital region in my skull. They have since been found in my cervical column, spine, elbow, wrist, pelvis, pelvis and lumbar. I was initially treated with Reclast which caused immediate and severe flu like symptoms. The longer lasting side effects have been bone loss in my jaw. This caused my teeth to fall out. Few dental surgeons would remove the roots. Only one fitted me with partials saying I was too young for dentures at 42. At 49, now, the remaining six teeth have broken and the partials slide and do not stay in place. I have spots on my liver from acetaminophen and ibuprofen. I was also treated with Prolia infusions for a year. This did not deter the growth of the infusions.
My approach for the last year has been holistic. I eat Whole Foods with no preservatives, low sodium, and nothing canned. I use very little sugar. I eat clean proteins and hardly any meats or grains. I use dandelion tea to help detox my liver. I use turmeric to help with inflammation. I have not have a scan in over a year because I know when and where the tumors are growing. There are no cures so I figured why not take matters in my own hands. I cold Turk eyed all opiates and it was hell but I do feel clear minded.
i would love to help anyone I can but know I stumble everyday. My pain is a unique battle everyday.